I have read many posts where RLS suffers have difficulty in getting GP's / Doctors to understand the severity and the impact it has on daily life .
GP's / Doctors prescribed on the basis of how the patient relates their suffering, and they do their very best to try and get it right.
I have found the RLS UK monitor invaluable. It allows the GP/Doctor/ Neurologist to get a very good understanding of the daily impact RLS has on sleep, work and social life.
It also gives you a pattern to see when you have bad or mild periods of RLS during the day.
This allows you to focus your medication to attempt to treat the worse times. No medications work straight away. They need to get into your system and they may only be affective for max 10hrs. Slow release medications may or may not be appropriate. The Monitor provides a valuable RLS record to help get you on to the right medication for your symptoms. You can down load it at
I have been keeping a symptom and sleep diary for 25 yrs. It really does help, we never remember everything in the doctor's office. AND a food diary/symptoms. I have found I have NO food triggers at all.
Thanks for this - I did not know there was such a thing.. I am getting ready to do a sleep test (even though I have protested to it several times) so that may help as well.. Best wishes with yours
Thank you for this link! I just printed a copy and will fill it out before my appointment with a sleep specialist. I have also prepared a list of how RLS has affected my quality of life. Hopefully I will be well equipped for this appointment!
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