How well do you feel your condition h... - Restless Legs Syn...
How well do you feel your condition has been managed over the last year?
not very well recently,at my gp surgery is very difficult to get an appointment, we ring to book, then we are given a time when a doctor will ring us back at home, to see if we need an appointment !!!, then its usually come and pick up a prescription please, after we have spoken to a doctor on the phone, i dont think this system is at all good, what about anyone who is elderly, and a bit frail, or cant express themselves very well. Does anyone else have this system at there surgery, i would love to hear.
Ridiculous!! chnage you GP there are far better out there
I am fortunate in that my GP is familiar with the condition and sees me as necessary. He is willing to discuss the condition with me. That said, it has taken many years and countless GPs for me to rech this point! I would certainly be pressing my GP for a proper face to face appointment rather than a telephone interview.
my GP is really clued up on RLS, but getting to the surgery for a face to face appiontment is near impossible to do,even at the pharmacy that is attached to the surgery, the staff there are unhappy with the situation, and they get a lot of flak from the patients when they pick up the prescriptions. Also, if i do get to see the doctor (rare occasion), hes telling me im depressed !!, im not, im just frustrated with the system. If we try to insist on a face to face appointment, we mostly get told "sorry none available". im seriously thinking of changing to GP as i cant stand this situation much longer. how can they say whats wrong if they never see you, theres around 12 doctors at the practice, and if you go in there, theres never more than 10-12 people as patients waiting to be seen. oh yes and we HAVE to ring for an appointment, we are NOT allowed to walk in to the practice and book and book anything!!
My GP is great but RLS is a new area for her, so slowly I am educating her. Its like most people thro RLS sounds so gentle, so its hard for them to grasp!! We need to be patient and persistent.
My test has become to use RLS or Ekbom Syndrome, the look on a persons face shows if they have any understanding. I have discovered if I say Restless Legs Syndrome then they all think they know but I need to know how much educating I need to do. So I get the best help I can get.
Although I've seen doctors in the past and described the symptoms, none have ever suggested RLS as the cause - presumably because they haven't been made aware of it.
My doctor actually suffers from RLS herself and all I got was a fact sheet!!
My Doctor picked up on RLS as soon as I mentioned my symptoms. Very sympathetic, and initially started me on my meds, and was quite happy for me to find the right level/type for me symptoms. He says you can explain, but he can't feel!
Wish all doctors were the same.
I manage it myself and tell healthcare provider what to do because they don't know. I educate them about RLS .
Seem to be going through a bad patch ,bit scared of going to bed ,,,but also getting a sore lower back now ,especially after being in the garden but it feels connected to the nerves in my legs
Well managed for the first 10 years or so but the last 2 years it has taken a change its much mire aggressive, attacks me 2 or 3 times during the day and often once at night, (taking the meds that worked for me before hand trying to time what time my attack was coming and taking them an hour before to prevent it) no longer works at the attacks still come regardless of medication cleverness, it seems to me RLS fights back, whenever I get it under control it changes and catches me out, but it also gets worse each time, and the last couple of years have been the worst, sadly my doctor seems to not know what to do with me anymore. It feels they have washed their hands of my condition. I wonder if this happens to other sufferers.
The only thing that helps is panadeine. But they are about to make it GP prescribed in Australia because it had codeine in it. I believe the opioid recepters are linked to RLS. It may be why low dose naltrexone works for some people
Well managed with advocacy on behalf of myself. I sought out the facility which I felt understood the treatment I had researched and believed in. Learn and advocate for yourself!
I voted not well-managed. But I take that back because I went to see dr. Buckfhurer
a week ago and now I am doing so so much better!
Moderation team
