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[Peter2017]

My husband has PSP he is in a nursing home and cannot do anything for himself, he has to be fully hoisted from bed to a special chair. His teeth are starting to fall out, does this happen to any other patients!

[JR61]

I feel so sorry for you and your husband, I fear that his teeth are suffering due to reduced oral hygiene. Probably long before he was in the home he probably was experiencing difficulties coordinating enough to thoroughly clean his teeth and gums and is probably now suffering from the effects of periodontal disease, possibly made worse by reduced vitamin levels due to feeding problems. I tried Corsodyl dental gel from the pharmacy which contains chlorohexidene which is used for gum inflammation prevention and a battery operated sonic toothbrush for my dad. We also cleaned his teeth whilst he was in the shower to avoid difficulties rinsing and spitting out. He had lots of implanted teeth and it was a big worry for us that he would experience dental problems. Sorry to say but a nurse friend of mine told me that patients come from hospital to her nursing home with necrotising mouth tissue due to oral hygiene not being a top priority in the hospital! Hope that you manage to make your husband comfortable. Best wishes to you both. Ruth x

[aliciamq in reply to JR61]

Wow - this has been a big worry - I will do something more for my husband!😬

[raincitygirl]

Hi Peter,

Sorry I don't have anything to offer on your question; just thought it would be lonely posting on new year's eve (and you just joined today I see..) Hard to think 2018 will be better when your loved one is in hospital, immobile and with painful ailments. When was your hubby diagnosed? Has it been a slow or fast journey? Whatever you have to face, people on this website understand and care.

Take care and hope you have some good moments with hubby in the new year

Anne G.

[Kevin_1]

Hi Peter2017

I see you already have good replies. Yes, the ability to use muscles diminish as the illness progresses. I expect you have read the PSP Association briefings?

I'm really posting to welcome you and to commiserate.

Wishing you both the best at a hard time.

Warmly

Kevin

[LuisRodicioRodicio]

Hi Peter 2017!

Agree with JR61.

Additionally.

We recently performed a blood test on my wife seeing that Vitamin D (25 Hidroxi) had levels of insufficiency.

The doctor prescribed "Hydroferol 0.266 mg oral solution", 10 ampoules. one ampule every week.

Parallelly take the sun in arms, legs and face.

Hope to be useful.

Luis

[LuisRodicioRodicio]

Hi Peter2017 again!

If physicians agree that there is a Parkinson like neurological disease (PSP, CBD, etc.), then I suggest to start an intensive and systematic gymnastic program as well as walking, up and down stairs, speech therapy, etc. as soon as possible, trying to slow down eventual muscle dysfunction.

In our case: Gymnastic tables 6 days a week: passive in bed (Move all major muscles) and active (helped by 1 or 2 people): At least go up and down 50 steps (odd days), walk 200-300 meters (even days), speech therapy exercises and exercises mouth and ocular muscles. Then she needs to rest at least 30 '.

In general it is important to encourage the patient to do things on their own. It is good that everything the patient can do by his own means, do it, even if it takes more time. With some help if necessary.

Without any scientific basis, only observation of few nearby neurological diseases PSP like, I have the impression that a specific program of intense gymnastics can slow down the disease progression in a significant way and is more effective the earlier the disease is detected.

Bearing in mind that Parkinsonian patients become significantly more fatigued (parallel to disease progression) for the same activities than those not sick, then they requires more frequent rest periods.

Hoping to be useful

Hugs.

Luis

[Melhukin]

Hi,

I noticed on Christmas Day after I had fed my dad he had food stuck in his bottom front teeth.

I brushed his teeth however, this time I pulled my dads bottom lip down to get to the food etc and noticed that my dads gums were red and that it looks like gum disease due to poor dental hygiene on his nursing home.

It’s the basic hygiene skills that should be carried out everyday. It’s heartbreaking.

X

[Progressive5]

Are they dentures or his actual teeth? My husband is in the final stages and has lost so much weight his dentures fall down in his mouth. I am going to see the denturist to see if relinning his dentures would help. He has lost the ability to speak and his jaw locks more.