Hi, just keeping everyone updated. The HIFU from July didn't get all the cancer and missed the the most important Gleason 7 in left anterior region. Now I have to get salvage radiation (another hifu is another 15k).
Probably going to do Cyberknife.
Key learning : Hifu still experimental and success very dependent on experience and skill of doc. MI had mine at NYU Langone with Taneja.
Good lesson - I think it is being oversold. FDA never approved it for prostate cancer -no one knows if it is effective, and what it takes to be effective. Anyway - there's every hope that CyberKnife will get the rest of it.
What kind of imaging did you have to get a good picture of cancer in the prostate? My doctor proposed HIFU (also NYU Langone) as a middle ground between active surveillance and prostatectomy. I thought HIFU was 25k?
One man in our cancer support group in Providence RI has had a similar story with HIFU. I agree with Tall_Allen: where are the data?
Did company Handling Hifu give you any explanation ?
My psa 8 months post HIFU is 0.02. Was 12 before. Proton beam was my first treatment that missed.
Now that IS shocking. I thought proton beam was the best radiation treatment you could get.
Its a great treatment. Many have had success. Somehow I had a small area in the lower right quandrant that stayed dormant for many years but started growing again.
All treatments have a chance of reoccurrence.
Wow my American Brothers ! that is expensive. I had HIFU in London with the best Professor of it, but it was salvage as I had previous Radiotherapy, which also failed, my wallet was not hurt at all ?, 25 k Dollars is a huge sum, My options now seem to be Bicalutamide until someone invents something better.
It's seems whole gland success much much less than partial. Very doctor dependent as well
Read my post 'HIFU and Metabolic Control'. I had HIFU 6 months ago across two large areas Gleeson 3+4. My peak pre-op PSA was 8.1, after HIFU 1.4ng/ml at 3 months, 1.2ng/ml at 6 months. I am on Care Oncology Protocol as a precaution, and LOTS of other stuff. My Sonic Screwdriver man said to expect a 70% PSA reduction as a good indicator. Sorry to tell my American cousins that the whole enterprise cost me not a single bean.
that's great. mine dropped from about 7 to 1.0 then doubled in a couple months so Cyberknife is up next.....
Northern California HIFU
Doctor suggesting HIFU
A Medical Adventure - HIFU
