newborn respiratory problems

[Kal87]

hello all! Just looking for advice or mums who have experienced similar.

My baby was born 2 weeks ago via c-section at 38 weeks (had gestational diabetes)

My son is oxygen dependent and also NG tube fed.

He experienced a dusky episode when we were feeding him 2 hours after birth. After many tests later they have discovered his airway muscles are floppy and it is also unsafe for oral feed due to milk going down his airway also when swallowing.

We have recently just came home with the plan of NG tube fed only and oxygen. However, I feel like I’ve had no information based on his problems. Will they get better in time? Will he more likely be NG fed until he’s older. Does the muscles around airway get stronger? Can we do anything to help?

feel like so many unanswered questions and lack of knowledge really.

Any other parents experienced similar or the same?

[Chiefy]

I'm sorry you're going through something so scary, I haven't got any experience of this in particular but didn't want to read and run.

Have you had a referral to paediatrics? My son was born with 1 kidney missing (picked up at 20 wk scan) and the maternity hospital couldn't really tell us anything. LO was referred to our local children's hospital and had a scan at 14 days old, we were then put on a pathway with them and received more info when we spoke to the renal consultant. Also your health visiting team might be able to point you towards some useful resources.

I hope your little one is doing well x