food constantly on my mind - Pelvic Radiation ...

Pelvic Radiation Disease Association

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food constantly on my mind

Blue_Hawaii profile image
7 Replies

Hi Everyone

Just wondering if anyone, With PRD

Are always thinking about food, from first thing in the morning, then until I’ve had my last meal before 6pm

I can’t wait to go to bed and sleep, so I stop thinking about food

I know I can’t eat most things, that’s good for you, but eat reasonably well

Not sure if my body is not satisfied

On Thursday I went to talk a lovely lady at Wessex cancer support centre

I have lost weight over the last year

My thoughts that because, I’m eating little and often

Also it was said to check the Sugar levels for Diabetes

We have a tester at home, I tested myself a few times

It showed I was on boarder line

So I phoned the GP

On that , they had no slots for me

I’ve emailed The Late Affect clinic Nurse

Waiting to hear from her

X Wendy

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Blue_Hawaii profile image
Blue_Hawaii
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7 Replies
Romian profile image
Romian

Hi Blue Hawaii,

Did they check your thyroid levels? I also lost a lot of weight. It turns out I have hypothyroidism. Normally I should gain weight, but after several months of having no appetite and not eating I lost weight. I was unsteady and I was falling. I started eating more protein. I am better now. I live in France where food is supposed to be very good, but they use too much butter, cream and fiber, which gives me diarrhoea. So I cook everything from scratch. I’m going to get an echocardiogram on my neck and blood work to recheck my thyroid. Regarding the PRD, I have an appointment with a proctologist in a couple of days. I will post about the results. Good luck.

Blue_Hawaii profile image
Blue_Hawaii in reply toRomian

Thank you 🙏

Perido profile image
Perido

I often feel a bit hungry and am usually satisfied after eating a small to moderate amount but then it won't be long before I'm feeling peckish again. I don't eat a lot in one sitting because it makes feel tired and a bit 'off'.

I have wondered if my radiotherapy treatment has impaired the ability of my gut to absorb nutrients. After 2.5 years of oral medication (Alendronic acid) for osteoporosis it seems my bone density hasn't increased as expected; I'm wondering if that's an indication that my gut isn't absorbing well.

I'm borderline underweight despite a healthy diet mostly home cooked. I get fairly regular episodes of constipation/diarrhoea despite a balanced diet and keeping well hydrated plus regular exercise.

Blood tests show my thyroid is borderline hypo, no signs of diabetes, high cholesterol.

Blue_Hawaii profile image
Blue_Hawaii in reply toPerido

Morning Perido

Thank you for responding

I suffer with, my body does not absorb Nutrients

I have B12 every 8 weeks, I would like every 4 weeks

Also take Folic Acid

Xxx

Perido profile image
Perido

Hi Blue_Hawaii

Maybe it's nutrient deficiency that's somehow triggering persistent thoughts about food? Your body's way of telling you something.

Got me wondering if I should start taking nutritional drinks, like the ones I was prescribed when I lost weight during my radiotherapy treatment. They're a convenient way of increasing nutrient intake and fairly platable imo.

I tested B12 deficient shortly after completion of my cancer treatment in 2017 and was prescribed with B12 injections. Maybe it's time for a recheck?

xx

JDKPA profile image
JDKPA

I get Zolendronic (sp?) acid infusions....the med is called Reclast. I get one infusion a year. After 3 years, my osteoporosis has been reclassified as osteopenia. So I guess my bone density has improved but it took a while.

Perido profile image
Perido in reply toJDKPA

Hi JDKPA

May I ask if you had Alendronic acid (oral) prior to the Zolendronic acid? If so did it help your bone density at all.

I've been on AA for 3 years but my DEXA scan indicates no significant change to my bone density. I've recently been offered ZA but I'm not keen on injections.

I'm wondering if my radiotherapy associated gut issues mean the AA is just passing through me and not getting to where it needs to go.

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