Groin ache - do you get it? I'm wondering if its lymphodema as my pelvis is slightly puffy on one side, which seems to be the side most affected by treatment. Its kind of a burning/aching/tight pain that sometimes travels down my thigh.
Will obviously bring it up with my dr, but thought I'd ask.
I have lymphoedema in one leg/foot as a result of my cervical cancer treatment. It started as a tight, achey type pain in one groin and puffiness at the top of my thigh and one side of my pubis - it felt a bit like I'd pulled a muscle.
I'm not sure what the situation is like in Australia but here in the UK I discovered that a lot of GPs are not well educated about lymphoedema; it took 3 appointments before I got to a GP who was prepared to refer me to a lymphoedema clinic. Help is out there but you may well have to self advocate.
Lymphoedema is my biggest post cancer treatment bugbear; if you have any questions I'm happy to try and help.
Yes I can also relate to the groin aches aswell as everything else ,but I dont have lymphoedema. Also I'm experiencing pain in my both my knees and shoulders? I'm wondering if this is due to the menopause which I was immediately put in due to the radiotherapy. ( I've read that menopause can affect joints) I am on hrt to protect my bones. Anyone else experiencing this? I'm due my consultant appointment today so going to ask, but in the past appointments they are not keen to discuss my pains and suggested that I should only be taking ibroprufen and paracetamol now. Which I have tried but not successful. I continue to take co codomol and diplafentic. I sometimes feel that I am not heard so I just don't mention it. 😐x
How long ago was your treatment?
Treatment ended end of dec 2019. Spoke to the consultant one I haven't met before he suggested physiotherapy, I dont think it's a bad idea to try?
Same time as me! My gynae oncologist is the same with pain - see the physio. I really don't think they have any idea what people are dealing with after radiation.
I have had all sorts of aches and pains. In general, my joints play up (including right knee). I am on hrt too, however I still feel like an old lady! Its perhaps too low a dose (50mcg estradot)??
I'm not sure I have lymphodema - the groin thing is such an uncomfortable ensation it made me wonder. I think perhaps a lot of what we get is nerve related.
I've got a phone appointment with the physio on Friday will probably just tell me to google something! I also now have a dodgy right knee how odd is that.? And can also relate to feeling old its a struggle some days but we have been through alot and we have made it through I just wish the professionals were a bit more understanding of late effects . I was told yesterday that this is probably me now as its almost 2 years on. I take 100mg utrogestan every night and estradiol patch which I change every 3 days have been on them for about a year and suggested to take them until I'm 50 so another 4 years. I can't say if it's doing any good or not !
Seriously I've had more help from you tube than any physio so far lol. Interesting about the right knee! Yes, our bodies have really copped it and I guess its still early days in the grand scheme of things, but I know what you mean re the 2 year mark as well. You do wonder if this is just what you need to manage now. I feel like i'm living in someone else' body!!
Can I ask what dose your patch is? I also take 100 of prometrium daily (utrogestan) and a 50 patch every few days. My hrt dr said i cant have more estrogen as the prometrium wont provide enough protection, however the gynae oncologist i saw last has put it up to 75 and said that should be ok. So now I dont know what to do!!! My bloods show that 50 is still quite low for me. I am 42. So hard to navigate all this!
My patch is 25mg, I was very wary about going onto hrt with the risks involved in that so I think I'm low dose, and I put it on alternate thighs. Apparently this is better as it reduces the risks? I think my bloods were around 43 I can't quite remember but somewhere around that. I also found out that my white blood count is a little low but that's quite normal and can fluctuate after all the treatments even after all this time. It sure is difficult to navigate all this, and to know what the future holds doesn't help with anxiety levels either. But we must plod on , and try the best we can. Look forward to the physio 😜🙈
Sorry you are having Groin painI myself do have at Groin pain or ache
It goes down my right leg to my foot
Having arthritis in the right hip, had the Hip replaced last year. Unfortunately I’m still having pain or aches
It’s nerve damage from the Radiation
I’m trying to manage it
Let’s hope your Doctor listen to you xxx Wendy
Sorry to hear this. Yes, I think i have a lot of nerve damage. It seems to come and go though and can sometimes feel like it has spread outside the treatment area ie right up to upper abdomen and down thighs. Almost feels like someone is cutting me with tiny knives! Horrible!
I’m meant to say also I have lymphoma in right leg x
Newbie !
GREAT NEWS AT LAST
Hi Everyone, I'm new to this but so glad I found it. Thought I'd introduce myself....no point in holding back!
