relapse?

[busyrosiebee]

I had gca a few years ago,Had the pred for 2yrs,which worked well.I have started getting swollen temporal vein on one side.,very tender.and I really dont want pred ever again.!Any advice please?🙏

[SheffieldJane]

This happened to me too. PMR and GCA can often go hand in hand. It is imperative that you get a quick and correct diagnosis, as a matter of priority. My diagnosis was GCA/LVV. I was absolutely gutted to have a short spell of the high dose again but neglecting GCA can have life altering consequences. Good luck with this. I was diagnosed by ultrasound scan of my head and neck. It was in my left shoulder.

[DorsetLady PMRGCAuk volunteer]

Whether you want Pred or not - and if you definitely have GCA, it’s likely to be the only drug that will protect your sight..,

[busyrosiebee in reply to DorsetLady]

had my blood done straight away🙏will know by noon tomorrow..thank u for the kick up the bottom😆

[PMRpro Ambassador in reply to busyrosiebee]

But blood markers aren't always the whole truth - so do be very vigilant and if you have ANY visual symptoms AT ALL, head for the nearest big ED. And not driving yourself, just in case!

[DorsetLady PMRGCAuk volunteer in reply to busyrosiebee]

My pleasure 😊.. having lost sight in right eye due to undiagnosed GCA many years ago -I’m always on the lookout (so to speak!) to stop it happening to others..

[PMRpro Ambassador]

You need a medical opinion - and if it is GCA then you WILL need pred or risk the loss of vision which can be total and is irreversible. The ultimate adverse effect of GCA is far worse than anything pred can do.

[busyrosiebee in reply to PMRpro]

You are right!Phoning the surgery now..thank u ☺️

[Angelsmummy]

Like DL I lost sight in one eye through undiagnosed GCA,glad you have seen sense,,sooner be on Pred than lose an eye methinks!!Good luck to you ,hope all goes wellxxx🎁😜