Drop to 1.5mg: I felt wonderful on 1.5 having... - PMRGCAuk

PMRGCAuk

21,084 members39,881 posts

Drop to 1.5mg

diana1998 profile image
8 Replies

I felt wonderful on 1.5 having dropped from 2mg after 3 months. I have been able to drop easily with no side effects from 3.5mg to 2mg dropping 0.5mg staying 3 months on each dose. But realise this is a big percentage.Then on the 5th day, Wham, pmr pain back across the collar bone and the wrists. Took 2.5mg, then back to 2mg and now ok. No use stressing but just so disappointed.

(I know Professor Dasgupta keeps some patients on 2mg for 9 months). But I've never had pain when dropping .

Maybe I should try the DSNS method or just stay on 2mg for longer or try cutting pills and try 1.75). Would love some advice from the Experts please.

I am busy and active but do rest for an hour every afternoon to get through the evening . Been on pred for 7 years.

Written by
diana1998 profile image
diana1998
To view profiles and participate in discussions please or .
8 Replies
herdysheep profile image
herdysheep

I am no expert but know the lower you get, the harder tapering can be. May be PMRPRO's dripping tap has caught up. Think I would stay a little longer to make sure build up has been knocked on the head. Currently doing same thing although my hiccup was from 3 1/2 to 3 - back on 4 at the mo.

PMRpro profile image
PMRproAmbassador

"I know Professor Dasgupta keeps some patients on 2mg for 9 months"

Not quite - that's a mix! Rod Hughes keeps patients at 5mg for up to 9 months, he finds it makes the rest easier. Baskhar Dasgupta keeps some patients at 2-3mg longterm, no specified duration, as it reduces the risk of relapse.

piglette profile image
piglette

I should stay on your current dose until you feel absolutely positive everything is OK and then try the 0.25mg drop and see if that work. Remember even such a seemingly small drop is quite a high percentage drop.

diana1998 profile image
diana1998

Yes it is. Dropping easily from 2.5mg to 2 was so easy it made me too cocky!

Gossiplady profile image
Gossiplady

Hi diana1998! I am no expert, but I have found 0.25mgs taper has worked for me so far. Slow but sure. Keep strong!

diana1998 profile image
diana1998 in reply to Gossiplady

Yippee! Hope I can do the quarter cuts!

Gossiplady profile image
Gossiplady

hi diana1998! Do you use a pill cutter? If you are on the usual tablets, easy! Available online from the usual Mr.A.

diana1998 profile image
diana1998

I've got 2 but they seem to blunt easily. I need another one but for now use a very sharp knife and a board.

Not what you're looking for?

You may also like...

Taper after going from 1.5mg Pred to 4.5mg

Hello! Just a quick question. A couple months ago I made the mistake of reducing from 2mg...

Different Slow Drop

Ages ago my rheumie whom I haven't needed for a number of years, gave me his version of a Dead...

Coming off pred

Hi all. I've had my PMR for about 2.25 years now and got down to 2mg pred daily last Sept. I then...

Oh well! 🤷‍♀️ I tried!

So I’d been on 2.5mg for quite a few months & decided to try alternate days on 2/2.5 &...

Left arm pain

For a few months, I've been getting a constant pain in the muscles/tendons in my left upper arm....