Diagnosed in June and ‘sympathy’ is unfortunately in short supply....I feel irritable that people, (especially) husbands think all ok because you look ok. It is hard for you but some men just can’t cope with illness, especially if you are the engine and coper in the family. Hope you get through the next few weeks and try not to stress...makes me much worse. It’s all a rotten business.
I was given 15mg pred...didn’t work so asked to up and then 20mg. Still took 6 hours to work so no good til lunch time. No immediate miracle for me. Then asked to spit 10/10 am and pm this made life much better. Now on 13mg at around 9pm only. Perfect. No pain at night and not so much steroid ‘madness’ during the day. Am now on dead slow 1/2 mg per 2 weeks reduction and see how I go.