Moving into week 2..

[Anne-NRAS]

The blog continues

gilbertsonsteroids.blog.com

x

[HeronNS]

Here's a way to avoid the clingfilm battles: wrapnmat.com/

[Anne-NRAS in reply to HeronNS]

Brilliant thank youx

[markbenjamin57]

Greetings Anne

Nice to see you here (if you know what I mean!) and to read the first pages of your blog - what have you let yourself in for?!

I like your writing style, it's refreshing to see someone writing in a light hearted way about the reality of living with PMR in between getting on as best they can with business as usual. We're fortunate, some others aren't so..

Keep up the good work and I'm sure you'll have many followers on this forum.

MB

[alexamarie in reply to markbenjamin57]

I am confused, went to new r he my and now say I have psoriasis arthritis . I am too young to have pmr? Dirry, writing this at 5 am.,can't see and in so much pain support groups? How high foes cup have to be? Also diagnosed with chronic Lyme disease.

[alexamarie in reply to alexamarie]

I am so sorry guys. I can't see.. how high dies your cr p level need to be ? He said in 90 . I do not have my initial labs. What does the error do for you. My birthday is Saturday.. hubby gone to Australia and no support from fsmily. What do I do?

[alexamarie in reply to alexamarie]

Foes the pain get worse at night ?

So sorry, on tablet my hands hurt to type sorry to interrupt if I am typing in wrong place.

[Anne-NRAS]

Thank you Mark. I am really enjoying writing the blog, and as you say just getting on with it but yesterday and today i'm not so good and so do feel for those who are really suffering all the time. My writing is helping me.

[markbenjamin57 in reply to Anne-NRAS]

Hi Anne. Yes, you certainly do get better and worse days with PMR, and sometimes it seems to have a life of its own regardless of the meds or level of activity / 'load'. I've found that it also drains mental energy, but you just have to roll with it.

I think we share an enjoyment of writing, and it can be good therapy for some. The 'witty' (sic) stuff I find myself writing here always takes my mind away from the pain / tiredness etc, and the forum is a great source of feedback and encouragement at so many levels.

MB