Chronic Fatigue

[daveD]

there is a article in Daily Mail about Chronic Fatigue. if of interest to any one.Also on about giving it a new posh name.Dave.

[trish29]

Hello daveD . did nobody see this article on Chronic Fatigue ?? I spent all day in bed yesterday with it and never got to see the article, its one of the things I hate most about my 11 years with PMR.. I have got extra exhaustion/ fatigue because due to a Hospital Mishap of losing my prescription for more of my Methotrexate injectopen injections I have had to go 3 weeks without them and my body just doesn't know what is going on and I've had to go back up on my steroids again to get off my bed . Luckily my prescription has been found and hopefully the injections will be Delivered tomorrow morning. I thank Tara at Alcura nursing and my Consultants secretary for not giving up and chasing my prescription .The main reason for the problem I believe was because of a lot of Rheumatology Nurses being off sick with the flu at the same time. If anyone has any tricks on fighting this chronic Fatigue I will be most grateful to read all about it .l'm always open to knew options .. I am feeling a bit better this morning so fingers crossed for a better day .. Wishing all fellow sufferers out there a pain free day . trish. 29

[daveD]

morning trish. Sorry you are having such a rough time, Fatigue has been one of my biggest bug bears from day one of this journey,mentioned it to Dr, answer could be the pmr + pred so i have learnt to live with it.now down to 4mg and still a problem.I dont no if you realize but you can do the papers on line.I dont know if the forum will allow me to post it,i use Earth Newspapers.com.All The Best Dave.

[trish29 in reply to daveD]

Thank you daveD .. I did get the Daily Mail article re Chronic fatigue online on my tablet today .Its a very interesting article .I have had a better day today because of resting yesterday . I believe that the fatigue comes with the steroids as its been more noticeable again since I have had to go back up on the steroids..it will be interesting to see what happens when I go back on the Methotrexate on Sunday evening. It will take a while to get used to it again and its side effects.

Thank you once again for posting about this article ..The Daily Mail seems to be very good about printing articles on PMR and conditions associated with it . best wishes. trish29

[PMRpro Ambassador in reply to trish29]

The fatigue can be due to the PMR or the pred - or if you are very unlucky, both!

I had the fatigue through the 5 years I had PMR and wasn't on pred, and it is very common with autoimmune disorders. It made me feel as if my legs and arms weighed a ton and I was dragging them along with me. My brain felt numb too when I was really tired. Once on pred, the fatigue remained for some time but it was better - I think the pain also contributes to the fatigue, being in constant pain is very tiring. Now I really can't say I have the fatigue in the same way - I do get tired and I wouldn't describe it as healthy tiredness but it is different. I'm still on pred.

[trish29 in reply to PMRpro]

Thankyou PMRpro for your information and i am really exhausted this morning after a bad night of pain in my legs ,arms and shoulders most of the night . I am having a quiet morning giving myself some TLC trying to build up my energy levels ready to start back on my Methotrexate injections tomorrow evening .The injections have just been delivered so at least the worry of the lost prescription is out of the way . I would love to go out as the sun is shining but I know I am unable to get the energy at the moment .I hate the brain fog that goes with the exhaustion/ Fatigue. I have taken 15mg pred today and probably again tomorrow and I will see how things go all week once I have had my injection .. I know I don't get as much brain fog when I am just under the 15mg steroid but that is nowhere near 10- 12-05 mg where my consultant would like me to be .. I think when that happens I will be crumpled up in a heap on the floor ..My poor partner is tearing his hair out as I am so snappy and tearful which I put down to the pain ..best wishes and thank you for your support PMRpro ....trish29

[PMRpro Ambassador in reply to trish29]

My niece has just posted on Facebook that she was looking forward to a ride in the sun but it has gone in We've had glorious sun all week but it's disappeared today and it may snow tomorrow (or rain, yuk!). Have you not got somewhere outside you could just go and sit in the sun? I spent Wednesday afternoon on the balcony (in shorts and a t-shirt!) and felt good with the real sun.

I do think the mess-up with your injections is appalling - I hope you are going to complain. Just because one person is off for some reason shouldn't make the whole system collapse. It could have been something that was absolutely essential it be taken regularly.

[trish29 in reply to PMRpro]

Hi PMRpro ..yes we have a small patio garden at the back and a garden in the front but I have to get down the step and at the moment I scream with pain when I try to go out and it would have to be a lot warmer for me to sit out as I am a cold morsel most of the time . I just need that bit more energy to go out on my mobility scooter and see the lovely countryside especially now the Daffodils are coming out..I think whatever methotrexate was in my system has now gone..it hurts to even hold a book or crochet ..just like all those years ago at the beginning but I don't want to go up too high on the pred .I was just getting on track with my injections . I don't like to complain but it has certainly caused a lot of stress. I gather quite a few nurses were off sick .. Its usually so well organised compared to the Hospital I was with before .. There are more patients than me and probably more in need of help ..just another PMR journey experience . thank you and I must say that The Alcura Medical Team at Alton Hampshire never gave up contacting the Hospital re my prescription and sending me frequent e- mails and sending out the injections today ..I thank them for that . trish 29

[daveD]

Good Morning PMRpro. I allso have thyroid problems + reflux, none of which seem to help, My main plan is is to keep my pmr under control.I have learnt to give myself a kick the Botty so speak&take my morning stroll + pottering in small garden for fresh Air? I have also taken good advice about DUST ect. the postman delivered this morning what for want of better word i will call poo mail to test for blood,it can get a bit over whellming? I hope that talking of poo has not put you off your breakfast.have tried yogurt etc for reflux no go.Please keep posting wih your super advice best wishes to one&all.O I hope this post makes some sort sense, muzzy head. Dave.

[trish29 in reply to daveD]

Poor you daveD , my partner has suffered with reflux for a long time but he doesn't have PMR so he would commiserate with you .I noticed that I had indigestion problems when I started on the methotrexate so we will see what happens this week when I start back on my injections ..It seems that if one medication doesn't get you then the other does !! How nice to get poo mail but I wish you well with that .take care and keep posting as so as we know how you are .We are all 1 family on this wonderful helpful Forum with so many different topics. trish29

[daveD in reply to trish29]

Moning trish. i deliverd morning papers to a couple of poorly residents had a look at what is shooting up in garden, just waiting for family to pick me up going out for a meal&pint of real ale sod the reflux.As you say without these forums we would really struggle, I have taken about 90% of my info from these forums,As for the tablets etc we are dammd with them &dammd with out them.sorry about the spelling .Best wishes to you&hubby. Also thanks to PMRpro.

[PMRpro Ambassador in reply to daveD]

Dave - takes a bit more than talk of poo to put me off my stride! I eat my dinner watching videos of surgery - German TV doesn't censor the details on their medical programmes!!! Too many years of working in/being married to the NHS I fear. Plus one daughter who is a nurse and the other is a paramedic...