I abruptly hung up on my adult daughter and apologised profusely later. Now I feel total
apathy and disdain for the non comuunication. Like I don't care. Evermore. I don't even
remember most of the original conversation. I am puzzled. Be it not for a Beloved Grand Child, I don't give a ****. What is wrong ?
I will share an experience that happened to me two weeks ago! I left home to go to meet two friends for lunch at 11:30. I stopped at the bank to get some cash, and that is the last thing I remember! That was at 10:59. The time on my receipt. The next thing I know, 1 1/2 hrs. later I am in Wisconsin. I live in N. Illinois. About 40 miles from home! I have no memory of anything that took place in that time period! I have no idea what route I took or where I came from. I saw a police car and turned around and went to him and said I needed help! I have PD and I'm lost and confused. And he helped me from there! My doctor has ordered some tests, but as of yet I have not been able to have them done, because of bronchitis! I get so upset at times and take it out on my husband, who is my caretaker and treats me like a queen and as precious as gold! I have no idea why these things happen, and as far as I can tell, so far, the doctor's don't either! One day at a time!
Blessings,
Carol
Thanks Carol. You and I have 2 things in common. Crazy Parkinsons and wonderful
loving caring partners. Thanks for sharing. I don't drive more than 2 miles from home,
can't drive in the dark. I only drive maybe twice a week. I am very happy you found that Cop and safely returned home. Wow!
Hello MGiradi,
I can not answer your question, simply because we are all different even in some small way. However, I can relate to your feelings about your grandchild. My 8yr old grandson has just turned up with his dad for a belated Christmas. I love the boy and enjoy speaking with him on the phone and taking him for an outing whenever he visits. I also need hope, so I spend some time reaching Parkinson's especially what other PwP have tried to give me inspiration. I am lucky, but do not always appreciate having a supportive wife. Also, I really enjoy nature of which I consider I am integral with. I love feeding the wild birds in my garden and watching their antics as they hang onto the fat balls and pecking the sunflower seed. Lastly, I find much comfort and inspiration in learning about Pantheism where I can relate to where I fit in with nature and others in this world including animals and other life. Yes, I have my down times, but there is still much to live for. My wish for you in this New Year is an uplifting of your spirits for we have much to be greatful for, despite having Parkinson's which I accept is a challenge.
Best wishes
Norton
Norton, thanks for the reply. I should share that I also have a passion for animals. I have within the past year lost 2 beloved Labradors. Both from nasty cancers. This Christmas
(on xmas eve) one 13 yr old brother ( a house guest as his CA family travels) of one of my deceased Labs needed emergency (second surgery in one week) surgery. THAT is the reason for the discourse with my adult daughter. Gus is 13 and the second surgery showed Enterococcus bacteria. We were taking him back to the Vet every day after the first surgery because of suspicious bruising, swelling that moved throughout his body each day, and extreme weakness and fever. It was one week after the 24th that the Vet knew which antibiotic was correct to use. The one given him post op was not effective for the specific hard to kill bacteria. He could have lost him easily. We did not want to have company because of it was one day post surgery and we also did not want to leave him alone. So, I have been accused of loving my animals more than my people. My loving healthy partner and caregiver are both passionate about the best care of our animals. We are just as consumed with love for daughter & her family. I see your beautiful black Labbie. I wish
I didn't have this hideous disease so I could work and have & care for more rescue Labs.
Best to you and I'm so sorry this was too long.
Thank you MGiradi, for sharing that with all of us. I am certain that many of us reading your heartfelt posts relate to your feelings. My black Labrador passed away some 18 months ago, he was a retired guide dog. I use his name and photograph on this site because I want him to live on in the ether and it pleases me no end to be referred to as Norton. Regarding the upset with your family please remember that we all see things differently and there is not too much you can do about that. I just hope that you get the opportunity to explain your actions and decisions once again and please try and understand their point of view and remember in respect of the situation, 'this too, will pass'.
Regards
Norton
Hi, This PD is a PAIN. Not only for us but for those we say things to that don't deserve the words (at least not with the harsh tones, foul words and ugly face that goes with it.) I also have experienced these actions. It seems we are upset with them and from some where deep inside our damaged PD brain comes out stronger and more forceful than we want. The longer I speak (shout) the worse it gets. I spoke to my doctor and she upped my wellbrutian. (spelled wrong I know, but don't get me upset about it. - LOL PD humor there.) It has helped alot. Still feel like giving them the 'what for', but I think in more of a settled adult manner now. God Bless all of you for a good 'calm' 2013.
Hi MGirardi! I am pwp 10 years dx 8. My daughter has a TBI following brain surgery. She blogs about her cognitive behavior issues on countdown2brainsurgery. The past year has been difficult. It takes me longer to get dressed, etc., to go anywhere. So far I haven't gotten lost but little lapses in memory (mom, I was there when we found out . . ., oh right, sorry, son) drive me crazy. Keep us posted what you find out.
Most sincere thanks to my wonderful friends, who happen to have PD, the encouragement is the best gift of the season and the new year.
Hello MGirardi,
I had almost the exact same experiences as you. My psychiatrist ran a day of testing and prescribed Exelon (in patchform). In two weeks I became the good person with a good memory; like 10 years ago. Hope this helps you...
MagicMax
My husband was better after starting Aricept but driving was a problem as he would put his foot on the brake and wonder why he couldn't accelerate. He also had problems getting dressed. He knew the parts went together-like a zipper- but couldn't do it anymore. He was so frustrated and angry with himself. I don't know why it happens but it seemed worse when I was not around to remind him to take his meds on time.
balance have a parkinsom
John Coleman tells us about his recovery from Parkinson's.
Is this proof that blue light damages the substantia nigra?
B1, Voice, and Tremor Observation
Have you ever been told by your Doctor that I do not have PD?
