What causes Parkinson's Disease in mo... - Parkinson's Movement

Parkinson's Movement

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What causes Parkinson's Disease in most people? Is it mostly toxins?

bepo
bepo

I believe, from all the studying I have done, that most Parkinson's is caused by toxins, i.e., Agent Orange in Viet Nam, 2-4-D, Dioxin, DDT, glyphosate (roundup), GMO's, heavy metals,toxins in air and water. If, indeed, Parkinson's is caused by toxins, then, it stands to reason one should work diligently to remove those toxins, including those in the brain.

When we went to a recent appointment to George's doctor, primarily to compare notes with the doctor and learn what new therapies he has found for Parkinson's. (BTW, He stated George looked good, and he thought hadn't changed from a year earlier.)

He also stated that there is a new form of zeolite that goes through the blood brain barrier and detoxifies the foreign chemicals in the brain. He said it is over the counter, has worked well for his other Parkinson's patients. George will take it at least 3 months. George is having a toxin urine test done through Great Plains Lab, to show where his beginning markers are before starting the zeolite. He will be taking one or two drops, I believe, in a glass of water every day. It sounds very promising. If you don't get to the cause of the problem how can you cure it? He will retest in 6 months. We will keep everyone updated.

106 Replies
oldestnewest

Yes, I believe toxins is one of the major causes of PD based on surveyed experiences from PwP, though it's by no means the only cause of PD. I tried to list other causes in this thread healthunlocked.com/parkinso...

I completely agree with you that to find the cure we have to find the cause. You are blessed to have an open minded doctor... mine isn't... in fact he is as close minded as you can ever be.

I never heard of Zeolite for detox before but I'm glad you mentioned it. Detoxing is also the solutions I believe can stop or at least slow down PD progression. healthunlocked.com/parkinso.... Passing the BBB also means the efficacy is high

It's good to have a project, whether you are right or not.

What is the OTC product called?

bepo
bepo in reply to ChrisWF

Our doctor said there are different brands. I guess I was so excited to get the word out to PD patients that I didn't want to wait to get the full name. I will update.

Toxins

Stress

Sleep deprivation

Genetics

Stroke

Radiation

Gut bacteria problems

Leaky gut

Leaky blood brain barrier

Nutritional insufficiency

Psychogenesis

Trauma

These are all alleged causes of pd but the real cause is pure bad luck!

Oh, and satanic possession, apparently!

GioCas
GioCas in reply to bassofspades

above-average motor reflexes previously the disease (and IQ :-) ).

Redginger
Redginger in reply to GioCas

Yes, y'all, dont forget the IQ!

GioCas
GioCas in reply to Redginger

I'm not joking, all the pwps I know had exceptional reflexes / reaction times. We would say with an automotive metaphor "the engine hit the head".

(-:

Redginger
Redginger in reply to GioCas

Yeah, it is hard to know when on these types of communication, but I wasn't joking either , though you might have thought I was. My husband (the done with PD) has a PhD, and many of the PWP are extremely bright and/or educated.

Removing the toxins won't necessarily grow back lost neurons, but the rate at which neurons continue to die will decrease. Decreasing the toxic burden on your body will increase your energy and well being a great deal, especially long-term.

Studies show that to grow new neurons requires frequent vigorous exercise and I also recently saw something that said lithium orotate regrows neurosynaptic branches too.

bepo
bepo in reply to bassofspades

Our bodies are perfect ecological systems. They heal themselves given the right nutrients and stimulus like exercise. When you have a superficial cut, your body heals itself. I was slated to have 2 knee replacements. I changed my diet, giving up dairy, and exercising my knees, taking prolozone injections in the knee, and I don't believe I will ever need a knee replacement.

ChrisWF
ChrisWF in reply to bepo

This is just a fairytale, Bepo. The whole point of disease (incl Parkinson's Disease, which is a good example) is that, to the extent that the body is as you've described, it isn't any more because of the disease. That is literally was a disease is.

There's a reason loads of people still die of heart disease and cancer (and PD) despite having access to all the medicine and knowledge we have now.

I think PD lends itself to your biases because it's sufficiently slow moving that you are able to convince yourself that you have the answers at any given point.

But what if George had ALS/MND? And would be expected to die within 2 years? Would you then agree that the body is not perfect?

bepo
bepo in reply to ChrisWF

I happen to believe that heart disease does not start in the heart, for most people, and that cancer doesn't start because there is a problem in the breast or prostrate. I believe that malnutrition and toxins, including a lot of pharmaceuticals, are responsible for a most of our chronic illnesses. I have read where ALS is also curable.

ChrisWF
ChrisWF in reply to bepo

You're just making stuff up now. Ridiculous. So all the kids with leukemia in the children's hospitals (who, i hope you willing to accept, did not fight in the vietnam war) are there because of malnutrition and toxins are they? ALS is curable, is it?

Give us a break, woman. This is getting old.

rescuema
rescuema in reply to ChrisWF

"Presenter: Richard Bedlack, MD, PhD, Duke ALS Clinic

Curcumin, one of the ingredients in tumeric and curry powder, has several biological effects that could be useful in treating ALS. There are 3 validated "ALS reversals" that occurred on curcumin, and there was even a "positive" clinical trial done in Iranian patients with ALS. "

vimeo.com/284788558

ChrisWF
ChrisWF in reply to rescuema

By this standard, PD has been "cured" about 1000 times.

The ROAR trial at Duke is interesting but it isn't a "cure" yet by any to stretch of the imagination.

rescuema
rescuema in reply to ChrisWF

You can't and shouldn't ignore the fact that some do manage to reverse their "incurable" diseases even if they're the lucky few and such protocols don't work for everyone since diseased state cause/reason differs.

ChrisWF
ChrisWF in reply to rescuema

Its not really for me to ignore that or not. Im sure those edge cases (that sometimes have far less sexy explanations like misdiagnosis) are probably interesting to researchers.

But I think it is useless to say that there is a cure for pancreatic cancer because some people survive more than 5y, or a cure for ALS becuase some patients had some degree of "reversal" after taking curcumin, or a "cure" for PD because one south african man is still doing well 30 years post dx thanks to his fast walking. It completely redefines the definition most reasonable people give to the term "cure", so there's no point to it.

You're also quite good at ignoring context:

"Our bodies are perfect ecological systems. They heal themselves given the right nutrients and stimulus like exercise. When you have a superficial cut, your body heals itself. I was slated to have 2 knee replacements. I changed my diet, giving up dairy, and exercising my knees, taking prolozone injections in the knee, and I don't believe I will ever need a knee replacement."

Our bodies are not "perfect ecological systems" at all. There are numerous diseases that the body will not "heal" given simply nutrients and exercise. ALS and PD are definitely in that category. You could put people in a bubble, give them only delicious nutrients and wonderful exercise, and some would still develop ilness and diseases that wind up killing them prematurely. As far as cuts healing go, well, some cuts don't heal that well either, which can be another sign of disease.

The chances of 10 year survival for ALS patients is no more than 10%. It's also a pretty shit experience for about 9 of those years. If you think that reflects a "cure", then basically every ailment on earth has been cured. Which is fine, but it isn't how most people use the term "cure".

rescuema
rescuema in reply to ChrisWF

First- it seems you’re confused who you’re replying to.

Second - avoid arguing on the semantics. Some who manage to reverse their diseased state by identifying their specific cause and by making drastic changes to their lifestyles to offset the devastating prognosis by trying various unconventional protocols hardly qualify as saying there is a “cure.”

Edit: this member keeps editing earlier replies. I swear another member here does exactly that duplicitous thing...hmm

ChrisWF
ChrisWF in reply to rescuema

I was offering the context for my comments, which you had clearly not previously absorbed, and evidently still havent.

You were the one that thought 3 ALS patients enjoying some form of "reversal" was relevant to my remarks about it not being curable so you created that nexus, not me. I never said no one with chronic illness has ever enjoyed some benefit from their own n=1 trials.

Perhaps you should follow your own advice before offering to me.

rescuema
rescuema in reply to ChrisWF

You were being unnecessary rude to bepo as usual and I gave you an example to consider before you continue your mockery. Apparently you can’t help being negative and unpleasant to everyone within the short months of being a new member here.

ChrisWF
ChrisWF in reply to rescuema

This is a health forum with a pretty low bar for earning and keeping respect. If bepo wants it (from me and the numerous others that are tired of her content) she can simply stop posting blatant misinformation. If this offends you, I do not care.

As for your claim, you'll note if you actually read the thread (a novel idea) that I was the second person to reply, and I was perfectly polite to her. I didn't allow my preconceived ideas to impact that reply.

rescuema
rescuema in reply to ChrisWF

No- she has a right to offer information to many who do find them useful. If you don’t find it useful, skip the thread rather than persistently following her around with useless and hostile criticisms that I’m sure many would rather not read.

ChrisWF
ChrisWF in reply to rescuema

And I have a right to correct her when she posts something that I think is incorrect. That is literally what a forum is. l am not preventing her from posting information.

If you have an issue with the style of a specific post, you can report it*. Probably better than starting a pointless argument like this one.

*Regarding content, we need to correct it as it won't be deleted on that basis.

rescuema
rescuema in reply to ChrisWF

Yes you have a right to correct dangerous misinformation. Perhaps you can modify your style- provide links to studies and evidences that contradict rather than what comes across as disrespectfully bullying her.

Ps: the admin simply delete reported posts from my experience but you should read the posting guidelines here.

ChrisWF
ChrisWF in reply to rescuema

I'm not interested in your comments or advice on this matter, but thanks.

rescuema
rescuema in reply to ChrisWF

No bully does.

ChrisWF
ChrisWF in reply to rescuema

I have my own view about you that has lead me to not have a great interest in what you have to say about this. There are others on this forum who I hold in high regard, and who I would be more inclined to listen to if they told me I should pull my head in.

rescuema
rescuema in reply to ChrisWF

Oh good. We’re in an agreement.

ChrisWF
ChrisWF in reply to rescuema

We hold mutual feelings about each other, yes 😂. I suppose that's nice.

GioCas
GioCas in reply to ChrisWF

and another day of work is over Lol

ChrisWF
ChrisWF in reply to GioCas

It's a tough job but someone has to do it 😋

GioCas
GioCas in reply to ChrisWF

yes but do not always overdo it with the same subject.

ChrisWF
ChrisWF in reply to GioCas

You have a point.

rescuema
rescuema in reply to GioCas

Elaborate Gio or you might encourage it.

Doubt he gets it.

GioCas
GioCas in reply to rescuema

he will understand

Hikoi
Hikoi in reply to rescuema

I think all have a right to quetion claims that appear unsubstantiated. In fact i think people are remiss if they just accept without question.

Parkie-
Parkie- in reply to ChrisWF

Chris,

Rescuema's comment to you:

"Apparently you can’t help being negative and unpleasant to everyone within the short months of being a new member here."

resonates with that of NRyan when you came abord :

"NRyan

NRyanChrisWF

3 months ago

I think it can be helpful to try and be a voice of reason....can you do it in a less condescending way please? No one on this site is at a picnic, we are all stressed to the max with this horrible disease and this life on this earth. We would love your input without making us feel like crap. Your knowledge is valued....please continue in a way that supports us. Much gratitude!"

Although you acknowledged at the time:

"ChrisWF

ChrisWFNRyan

3 months ago

Noted. Edited"

you have often been offending. Please refer to this before posting unpleasant comments: No one on this site is at a picnic, we are all stressed to the max with this horrible disease and this life on this earth. We would love your input without making us feel like crap.

Kind regards

ChrisWF
ChrisWF in reply to Parkie-

This is all much ado about nothing. If you have a problem with the tone of a post, report it. For better or worse, posts that contain misinformation are generally not deleted, so if we want to see them rectified, we need to respond to them.

I think context is helpful here: Bepo has CONSISTENTLY spread misinformation since she got here. You might be ok with letting that slide, but i still prefer to correct it.

For what it's worth, i think the forum could use considerably tighter moderation. But when that comes up, the votes seem to be for a free-for-all.

But since you asked so nicely, I'll try to keep it in mind 😊

Parkie-
Parkie- in reply to ChrisWF

Thank you for editing your reply to me by adding the last two paragraphs. This corresponds more with this forum:

healthunlocked.com/parkinso...

Although I disagree with what some members say, they sometimes bring good info that I consider using. People can make up their mind, in my (and in the administrator's) opinion, there is no need to be hostile over it.

Kind regards

rescuema
rescuema in reply to Parkie-

This “new” member contributes nothing but Incessant negativity. The arguments and statements are full of incorrect facts and blatant erroneous remarks that I find tedious to correct in spite of “his” belligerence. I believe this is a troll account created by another member here.

bepo
bepo in reply to Parkie-

Thank you for that post. So he was changing names to go incognito, but the style and sarcasm is the same between ChrisWF and ChrisWFNRyan? What will his new name be??

How about the commercial name of this new zeolite form so people can start looking into it? Thanks.

bepo
bepo in reply to MarionP

I rushed to get this info out, and our doctor had already left for the day. I will update. I think it was clear something. It costs about $200.00 a bottle, which, as I understand it, will last one month. I just thought this post might give some people hope.

bepo
bepo in reply to MarionP

Our doctor is out of the office this week. I will update everyone next week with the name.

Thanks! Sounds hopeful! I had heavy metals exposure, for a number of years, at work, although I used respirators! Also, I have had 3 concussions, before I was diagnosed with PD!

bepo - can you be more specific— what OTC zeolite were they recommending? Did you need to have mercury/amalgams removed from mouth via SMART method before using?

jujulini
jujulini in reply to OLS3010

OLS3010 - Yes, you need to remove dental amalgams (properly!) prior to any detoxing/chelating. But detoxing/chelating also needs to be done properly, otherwise your condition will worsen. See my profile for more info.

bepo
bepo in reply to jujulini

Absolutely. We went to a biologic dentist who knew the proper way to remove the mercury. You certainly don't want more mercury to be absorbed during the process.

bepo
bepo in reply to OLS3010

I had two good friends die of PD. When I saw the slight tremor in George, I said, You have Parkinson's; we have to get your amalgams removed and have root canals checked for abscesses. He did both. I think everyone needs to get mercury and toxins out of their systems.

Hikoi
Hikoi in reply to bepo

Didnt your friends remove their amalgam?

Following

you believe Parkinsons disease is mainly caused by toxins such as

agent orange - deployed in Vietnam in the 60's (origins in the 1940's)

2-4-D - again origins in 2nd world war - widely used since the 1940's

Dioxin - not sure specifically what you have in mind - but probably TCCD - agent orange again

DDT - Technically 1874 - but really in use from the 1930's

Glyphosate - 1950

These are primarily responsible for Parkinsons Disease, named after Dr James Parkinson who first comprehensively described the disease in his "Essay on the shaking palsy" in

1817

Spotted the weakness in your theory yet? Don't get me wrong - I think modern toxins probably contribute to the increasing prevalence of Parkinsons, but they are pretty obviously not the main cause of a disease which pre-dates them

Marc I know is concerned that being sprayed with agent orange contributed to his PD. But it didn't contribute to mine or my Dad's or my father-in-laws, or my mate Jims, or anyone at the clinic in Carcassonne, or the clinic in Toulouse, or on the Cinpanemab trial.

And I bet that there are other Vietnam vets sprayed with agent orange who don't have PD

If you look in the wrong place for a cause, there is a chance you will find false solutions

ChrisWF
ChrisWF in reply to WinnieThePoo

I think the other potential speed bump here is that if an injury is caused by whatever chemical (If we assume for the moment that it contributed to the PD), that chemical is not going to be lingering in the brain 40 years after exposure. So I'm not sure there will be loads of 'toxins' to remove from the brain even if they did get in there and do some damage at some point.

Also, am I the only one that is a bit suspect about taking something (that you can buy OTC) that crosses the BBB based on what can really only be described as a punt? Anything that crosses the BBB has the potential to damage as well as help. As much as it might seem at times like our brains couldn't be any more damaged, I'm sure they can be if you take the wrong things.

MarionP
MarionP in reply to ChrisWF

Chris: Am with you on the doubts, don't think there is anything applicable to help with PD. Would need to see considerable actual proof, of which there seems to be none.

bepo
bepo in reply to MarionP

People are so used to reading about double blind, placebo controlled studies, promoted by pharma, and in most cases, organized by pharma. Well that doesn't happen, for the most part with natural substances, that can't be patented. One goes by anecdotal information. An example of that is the studies that came out of Italy and Spain about how effective ozone is in treating Covid patients. In the US, we have thousands of double blind/ placebo studies, many manipulated by pharma.

We are at the bottom of the health index for industrialized nations. We take more pharmaceuticals, which are allowed to be advertised. The 3rd or 4th leading cause of death in the US is pharmaceuticals. They want to keep us alive long enough. It's all about profit.

bepo
bepo in reply to bepo

We were told tobacco was safe. We were told DDT was safe. We were told eating a high carb diet, low fat was safe. We were told amalgam fillings were safe. We were told glyphosate/roundup was safe. We were told statins were safe.

ChrisWF
ChrisWF in reply to bepo

And now you are being told that some product sold OTC (that you are unable to name and that is said to enter the brain) is safe.

MarionP
MarionP in reply to bepo

None of that links to concluding zeolite just doesn't adsorb everything it encounters in a stomach filled with free floating ions far sooner than it will ever get into the digestive tracts. It's all a non-sequitur.

ChrisWF
ChrisWF in reply to bepo

"It's all about profit."

Says the woman lining up to pay $200 a month (which at a couple of drops per serve can't be more than an ounce or so) for a product that she cannot even name that was recommended by a single doctor.

bepo
bepo in reply to ChrisWF

I actually am beginning to wonder if you are a troll, working for the pharmaceutical industry to, in effect, tear down any comments that don't support pharma. No one else, who wasn't paid to do so, would take the time you do to discredit natural remedies that have no side effects.

ChrisWF
ChrisWF in reply to bepo

What's hilarious is that you think a product that you take a drop at a time and costs 200 dollars an ounce is going to be a 'natural remedy'. It's also pretty wild that you are willing to conclude on both it's efficacy and it's side effects despite literally not knowing what it is called.

The reason most 'natural remedies' (for chronic ilness) dont have side effects is that they dont have any front-effects either. Tomato juice has no side effects!

Hikoi
Hikoi in reply to bepo

You are at the bottom of the health index not because of big pharma but because you do not have healthcare for all , not Health care based on ability to pay but on need. The rest of the developed world does provide health care for all its citizens.

bepo
bepo in reply to ChrisWF

Our doctor, who continually is increasing his knowledge base through education, feels this is the only detox solution that passes through the BBB. Could it be, that because the chemicals can't escape the BBB and that they are still there for 40 years? I know there are studies on this.

MarionP
MarionP in reply to bepo

Education based on what? What basis of "education" can there be if there is no science? And by the way, there are many forms of science, but they all use the scientific method, there are still rules of statistics, controls, and illuminated sources of bias that are then eliminated to definable extents by scientific procedure. But doctors are not scientist or engineers unless they are specifically trained to be, medicine is a technical, applied discipline, not a knowledge-creating discipline unless the doctor is trained in science, which is knowledge development and discovery, all very formal. Without it, time spend "educating" is just organized undisciplined talk, same as with any lay person.

ChrisWF
ChrisWF in reply to bepo

This isn't how the BBB works at all, but given that you are not interested in any kind of documented scientific research (anything you don't agree with you will just say is the result of corrupt big pharma influence), I am not going to bother.

bepo
bepo in reply to WinnieThePoo

So much of what I have read says toxins are a huge part of PD. As the world increased the use of toxic substances, did the rate of PD increase?

WinnieThePoo
WinnieThePoo in reply to bepo

It may have increased the rate a bit, but it didn't become the fundamental cause. PD is significantly a disease of old age and so as people live longer now, more of us live long enough to get PD

bepo
bepo in reply to WinnieThePoo

Certainly old age does increase the incidence of PD from what I have read. Could it be these toxins have accumulated and finally express themselves with old age?

WinnieThePoo
WinnieThePoo in reply to bepo

I think that misses the point that for 200 years after James Parkinson wrote the modern definition of a disease which has probably been around since old testament times, the toxins you want to hold responsible didn't exist. But people kept getting old and getting PD

MarionP
MarionP in reply to bepo

Putting something into print doesn't make a thing so any more than chaining monkeys to typewriters does.

bepo
bepo in reply to MarionP

Are there already zeolites in your PD medication?

PubMed abstract April, 2019:

Zeolites are porous minerals with high absorbency and ion-exchange capacity. Their molecular structure is a dense network of AlO4 and SiO4 that generates cavities where water and other polar molecules or ions are inserted/exchanged. Even though there are several synthetic or natural occurring species of zeolites, the most widespread and studied is the naturally occurring zeolite clinoptilolite (ZC). ZC is an excellent detoxifying, antioxidant and anti-inflammatory agent. As a result, it is been used in many industrial applications ranging from environmental remediation to oral applications/supplementation in vivo in humans as food supplements or medical devices. Moreover, the modification as micronization of ZC (M-ZC) or tribomechanically activated zeolite clinoptilolite (TMAZ) or furthermore as double tribomechanically activated zeolite clinoptilolite (PMA-ZC) allows improving its benefits in preclinical and clinical models. Despite its extensive use, many underlying action mechanisms of ZC in its natural or modified forms are still unclear, especially in humans. The main aim of this review is to shed light on the geochemical aspects and therapeutic potentials of ZC with a vision of endorsing further preclinical and clinical research on zeolites, in specific on the ZC and its modified forms as a potential agent for promoting human brain health and overall well-being.

MarionP
MarionP in reply to bepo

Actual source please, to review the statements' basis, in context, whether evidence or just sales talk, assess source, context & and it's references, thanks.

bepo
bepo in reply to MarionP

pubmed.ncbi.nlm.nih.gov/?te...

ChrisWF
ChrisWF in reply to bepo

"So much of what I have read says toxins are a huge part of PD. As the world increased the use of toxic substances, did the rate of PD increase?"

If you have done as much reading as you claim, why do you not have the answers to these questions that are fairly central to your stated positions?

Toxins are also produced by pathogens - fungi, bacteria and viruses. Exposure to natural toxins can also occur through ingestion or inhalation. They also had some nasty industrial chemicals back then, like the ones used for tanning leather. So it is possible that back then exposure to toxins was a cause of PD, but how significant - who knows.

Someone posted recently the possibility of viral infection triggering PD. If infection is a cause, it may be a 'hit and run' situation, rather than a chronic, ongoing infection. That's the flaw I see in a lot of alternative health - perhaps correctly inferring that something like chronic fatigue syndrome was caused by infection in a particular case, but then assuming that the infection is ongoing and needs to be treated when actually the infection is no longer active but produced a toxin that caused damage or otherwise caused long-lasting effects, e.g., epigenetic changes.

Causation in most chronic diseases is typically multifactorial, anyway. I can relate to Medzhitov's story of a genes vs environment debate at a board meeting:

youtu.be/AysOj1ewaYI?t=1371

Nope. PD is pretty reliably due to dopamine shortage caused by lost neurons. Removing toxins may be a good thing but won't replace lost neurons.

As with so much on this forum, the kindest thing i can find to say is earth's revised entry in the hitchhiker's guide to the galaxy

"Mostly harmless"

bepo
bepo in reply to WinnieThePoo

What causes the dopamine shortage? Do you think the body can grow new neurons?

Hikoi
Hikoi in reply to bepo

What caused the dopamine shortage, well unless you have proof otherwise it will be the same thing as caused Parkinsons 200 years ago when James Parkinson wrote about it.

MarionP
MarionP in reply to WinnieThePoo

Absolutely!!! Douglas Adams also said the job of a President is to divert attention away from the real power.

People should note that even "Mostly" harmless is to be taken as "compared to its effect on the entire galaxy." Matter of relative proportion. ("Have some sense of proportion!" she used to say to him, 28 times a day). Down here, it's not so harmless. When you demolish a planet to make way for a hyperspace bypass, it sort of does matter to the planet.

I think, that being married to my PD husband for 58 years, since the age of 18, we were exposed to all the same toxins (if any). I don't believe his illness was caused by toxins. We always lived together in the same house in the same areas, and for a long time. He died. I'm 78 and the only thing wrong with me is bad teeth!

bepo
bepo in reply to rhyspeace12

Did he work with chemicals?

No he didn't, he worked in an office building. His mother, who lived with him from his birth to 18, lived to be almost 101 years old.

bepo
bepo in reply to rhyspeace12

wow! He must have had a gene for PD.

bepo
bepo in reply to rhyspeace12

This quoted from Dr. Mark Hyman, MD: Food is more powerful than any drug when it comes to reversing disease (in fact, most drugs don’t prevent disease, they merely manage it). Most diseases associated with aging are driven by food (bad food), but good food can often cure them. ⁣

If I had one “medicine to take with me anywhere in the world to heal people it would be food. My patients are often shocked and surprised when they’re healed by a change in diet. It seems almost magical. ⁣

No one else in his family, or extended family had Parkinson's.

welding fumes especially galvanized....constant high stress dumping the toxic by products of fight or flight metabolic pathhway.........drinking well water gives up to 60% increase in pd. likely from AG chemicals in the water table.

bepo
bepo in reply to beehive23

Absolutely!~

Thank you.

Levod
Levod in reply to ChrisWF

I haven't read every one of ChrisWF's posts, but I find him very reasonable, and a solid contributor to the forum, especially when it comes to countering those that live in fantasyland (IMHO, these folks do more harm than good)...

rescuema
rescuema in reply to Levod

Levod, I'm quoting one of your post -

"I don't have diabetes but have had blood sugar in the pre-diabetes range on several occasions, so I try to watch the carbs I eat (I have my yearly physical next month, and I am worried what my A1C will be!)...

I eat very little protein before my last dose of c/l for the day.

For breakfast and lunch I have been eating low glycemic foods like blueberries, strawberries, watermelon, cantalope, apples, popcorn, Breyer's vanilla low carb ice cream (I love this stuff!),...

Lately, I have been living on the wild side, and having a small (1 cup) bowl of Honey Bunches of Oats with Almonds for breakfast..."

healthunlocked.com/parkinso...

Sorry to deliver a bad news but that's anything BUT a low glycemic diet. That's living in a fantasyland for a possible prediabetic. It's good you at least exercise while you insist on denigrating most natural supplements including B1.

Levod
Levod in reply to rescuema

Hi rescuema:

"That's anything BUT a low glycemic diet. That's living in a fantasyland."

Say what? "blueberries, strawberries, watermelon, cantalope, apples, popcorn, Breyer's vanilla low carb ice cream (I love this stuff!)" are very good choices for someone who is watching their blood sugar. They have a relatively low glycemic index or glycemic load... and they are quite palatable...

rescuema
rescuema in reply to Levod

Concentrate instead on greens (alternated), beans, nuts/seeds, avocado, cruciferous veges, non-refined carbs, and avoid cassein (may spike insulin and inflammatory) and fruits loaded with fructose (BAD). I excuse your healthful berries but the amount also counts and will spike your blood sugar if eaten enough.

bepo
bepo in reply to Levod

Diabetes can be reversed with diet and supplementation.

GioCas
GioCas in reply to ChrisWF

Still at work... Follow my advice, do not exaggerate .

No it's not like that, Cris is an intelligent person and does a hard job for a living. He has to stay here reading all of our posts, I couldn't do it.

Very boring.

I hope he understands that everyone needs to express their ideas and be heard even if we think they are wrong.

It's a hard world for everyone.

A little mutual respect will do everyone good and everyone would get better results.🤟🏻

rescuema
rescuema in reply to GioCas

The below post is very telling.. He doesn't know anything about nutrition but advises trying an unproven drug on a trial without considering potential complications with l-dopa.

healthunlocked.com/parkinso...

GioCas
GioCas in reply to rescuema

Emh, yes , nobody's perfect. :-)

my opinion taken from a italian prof. it is caused by a dysbiosis (constipation) that cause sa shortage of aminoacid thirosine TYR (and a lot of thiramine) in the blood that causes the nerurons to reduce and then suspend activity (electrical disarray) due to lack of TYR and work /move with the remaining ones. it can be seen as a survival strategy of the body that hides for a long time the problem.

my very early signs were constipation (i was evacuating every 3 days, alternating a row of stools solid like rocks and diarrea subtle) assimmetry of movements and muscles power or response (es. loss of precision and speed controlling the mouse). My first symptom was the mouse control and a very subtle lack of energy at the age of 25 (diagnosed at 40)

to be more precise i've always had a weak lower back, with pain when standing up or walking for 1 hr and more. Muscles' strenght and power was not an issue because i've been an agonistic swimmer for 12 years, training daily for 2 miles and I always remember this lower back soreness.

I can't say when the lower back weknesses started because i can't remember a day without it. Looking at the pictures taken when i was a baby I can say that i was always with a curved back so probably i may have been born with it.

note that only the production of LD from TYR is decrased (feed-back controlled), while the production of DP form LD (all at once) is not impaired

bepo
bepo in reply to Somic67

I am sorry for all you have to go through. George had the constipation issue early on, as well. He hasn't had it for years. He takes 2 magnesium a day.

Somic67
Somic67 in reply to bepo

thank you. if Magnesium is the only medication with PD then he is very lucky.

bepo
bepo in reply to Somic67

We do all natural supplementation, and take no pharmaceuticals. He takes mucuna, and amino acids to control the PD, He uses a PEMF mat, near infrared nasal applicator, ozone sauna, far infrared sauna. He takes methylcobalamin (B-12)and methyl folate. He also is experimenting with high dose B1.

How about testing for heavy metals and toxins? When we went to one of the first doctors we researched on PD, who used mostly natural supplements, the first thing he did with ALL of his patients with chronic diseases, was to test them for heavy metals. George was over the top in lead. He has chelated them, and his level is much lower, but still out of the safe range.

Somic67
Somic67 in reply to bepo

You are very very good in this. You are saving your future life.

Keep him far from modern meds. They make the disease worst and create addiction.

Read this page (if you have time): the truth about anti-PD meds:

pdrecovery.org/once-upon-a-...

pdrecovery.org/wp-content/u...

Mucuna is good to control symptom Is natural source of levodopa full with many other neuro protective anti-oxidants. it takes time to be effetive because it must go deeply in the brain and you have to wait 4 to 12 weeks before inceasing the dose. When you see it becomes effective you have to reduce it to avoid overload at half of the last increase. if symptoms get worst rapidly - weeks or months - it is not the disease but too much mucuna, then you need to reduce it further. There is a sort of inerzia to reach therapeutic dose and to decrease it. As std meds It may not be the solution. the difference with std meds is quantity reaching the brain is 1000 time less and with all the antioxidants of the bean that support the brain in the management of levodopa that is toxic at the wrong quantities. The pure L/C mix of the meds is a shock for the brain that defends itself decreasing sensibility and burning it or shuting down neurons.

Pls see my comment to another post

-------------------------------

healthunlocked.com/parkinso...

my opinion (shared with my neuro) is that incrase the meds is a short term solution.

The more you get the more you will need in a recurring circle.

There is no way to have L/C lasting long with its half life of 60'-90'.

the big mistake of our std meds is that they have too much L/C and body/brain try to protetc itself reducing sensibility and increasing waste; this is because neuro/patients looks for immediate results, thus highly overdosing. But dopamine is missing in the deep brain where Levodopa arrives in a effective quantity after months while it arrives immediately to the motor centers in the brain frontal cortex.

The opposit, mucuna pruriens (without Carbidopa) given with meal (es. glass of milk for the fat) for 1 to 3 months before every increase and when effective reduce to stabilize response, can last forever without need to change therapy.

CBD+THC oil is available for sleep/stress problems.

-----------------------------------

or in other words

"Anciest Indian medicine uses mucuna, ashwaganda and cannabis in their natural forms to cure the disease without the side effects and long term problems given by Modern therapies. The therapy itself is permanent and there is no need to change medication for the rest of the patients' life (no wearing On/Off, no diskinesia or distonia, no addiction, no need to increase meds, no sleep problems, ect). This is simply due to different quantities of levodopa reaching the brain (mgr vs ngr): Too much casues the overload of neurons and the complete shut down of their ability to produce dopamina and to maintain neurotrasitters balance (including endorphine). In western medicine external levodopa replaces the internal one (with some vital systems arriving to depend on it - this is the reason of the DWS = Drug Withdrawal Syndrome and the risk of NMS = Neuroleptic Malignant Syndrome), while in Indian medicine it only balance carency without any damage. This is the main difference between the two medicines: western looks for immediate results, not careing for body health and systems balance: we want to rapidly shut up the body claim - symptoms - and go back to rush for money and our lifes; Oriental medicines look for internal body, mind and soul balance naturally and gradually)

"

Hope this helps

all the best for you and your care

bepo
bepo in reply to Somic67

Thank you for your post!

Somic67
Somic67 in reply to bepo

instead of Kelation (that I did too), that can cause minerals deplation if not taken as supplements during therapy or re-intoxication if not done properly, have you tried fasting for 5/7 days every 3 or 6 months?

It is very effective also with heavy metals and has much more benefits and less risks.

bepo
bepo in reply to Somic67

When you chelate heavy metals, you have to take small doses of minerals that also get depleted during chelation.

rescuema
rescuema in reply to bepo

Bepo, modified citrus pectin is one of the best to detox lead and other heavy metals safely. Look into it.

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