Sleeping with the enemy
Those of you who read my posts in this forum will know I recently after a decade got my sleep back. It is cause for great celebration 😄
But as always with this illness you are faced with never ending compromise. Getting into bed is ok getting out is somewhat of a challenge but worse is the inability to move, or turn over. It's like a nighttime paralysis. And I don't like it.
I'm trying all the tricks slow release meds and silky pyjamas but I haven't fixed it.
If you lie in one position for too long you end up with chronic back ache or neck ache on top of the normal rigidity pain.
But far worse is the sheer 'want' to move and total inability. It's like an internal claustrophobia.
Since this is a fairly new status for me I am still trying to work out how to handle it more effectively from a mental health perspective.
I'm also balancing some new limitations as unless you have friends who are happy to shove you in the night like Philip now does, solo sleepovers are a thing of the past.
I have the sense that 2016 is the tip of my PD iceberg. I've had it good for a lot of years and I've learnt a lot.
In all things there is a mix of adversity, success, challenge, growth and adaptation. I intend to be smart about it happiness and joy is a state of mind not of body.