📣 Discussion Topic: What does pancreatitis awareness look like to you?

[Skye_MC]

Hi everyone 👋 Hope you all have enjoyed this past week! The Mission: Cure team is about to head off to PancreasFest in Pittsburgh, PA next week.

Here, we'll be networking with a number of pancreas experts and researchers, and learning about what developments there have been this last year when it comes to pancreatic care!

Of course, we'll also be using this opportunity to educate providers and bring awareness to the common misconceptions surrounding pancreatitis and what patients have told us they need more support with.

We'll be sharing updates about PancreasFest on our social media, so be sure to tune in these next few weeks! In the meantime, let me know – what does pancreatitis awareness look like to you?

[deniseinmilden]

To be honest.... It doesn't!

Very few people have even heard of it and only a small percentage of them have any ideas about it.

Good luck with your Fest. The new developments in care sound positive.

[Skye_MC Administrator in reply to deniseinmilden]

This is very true! Not enough people even know what a pancreas is!

[Jackie1947]

Not heard of this. I would however be overjoyed if an alternative to pork based enzymes were discovered. I cannot have treatment.

[Susaberry]

There is very little awareness about this disease.

[Hidden]

I have chronic pancreatitis and PEI. hadn't heard of it even though doctors had diagnosed it 8 years before they told me I have it. The doctor who told me automatically assumed I had chronic pancreatitis because of alcohol and didn't believe that I don't drink EVER. I was trying to ask him if changing my diet would help me and could this have been caused by taking hydrocortisone (hormone replacement as I had pituitary gland removed) for 25 years but he just kept repeating "you have to stop all your drinking". This tells me that doctors m, unless they're specialists have very very little pancreatic awareness. I have found it very difficult to learn about it and have learned much more from people living with the same conditions as myself. So I'd say that awareness is shockingly bad. I'm in Scotland, UK.