spondyloarthropathy?

[Bakingdeb]

hi,

Just wondered if any of you have or knows anything about spondyloarthropathy.

Thanks

Deb 😊

[Bananas5]

My husband has Ankylosing spondylitis....part of the same family I believe

x

[Bakingdeb in reply to Bananas5]

Thank you, I’m awaiting an MRI for confirmation of diagnosis. The pain is steadily worsening month by month & seem to be running out of painkiller options now 😢

[PFKAAde]

Hi Deb

If you were to ask that question on the NRAS section of Healthunlocked I suspect you’d get more reponses (even though it’s Rheumatoid Arthritis there are lots of ‘flavours’ and all are welcome).

All the best.

🙏🏻

[Bakingdeb in reply to PFKAAde]

Hi, I’m very new to healthunlocked. How to I find the NRAS section? Sorry for sounding so thick! 😊

[Hidden in reply to Bakingdeb]

Hey, we all started off here not knowing much. I still don't know much and I've been here 3 years lol. Welcome 🙂

[PFKAAde]

Hi Deb

Depending what device you are using at the top of the screen is a small grid of 9 ‘dots’. If you tap / click this you should see the option to ‘browse communities’. Tap this and scroll down until you see ‘NRAS’. Join that community and you’re all set.

NRAS = National Rheumatoid Arthritis Society and is a UK based charity. The board has members with all types of arthritis and is quite busy. There are plenty of posters on there with AS or other spondyloarthopathies.

All the best.

🙏🏻

[Bakingdeb in reply to PFKAAde]

Thanks so much! I’ve found it now & will have a browse through 😊

[PFKAAde in reply to Bakingdeb]

You’re most welcome. 🙂

[johnsmith]

See an Alexander Teacher. Will not cure what ever it is you have got. They can help you have better control of your muscle symptoms which in turn will make quality of life better. Pain killers can make your situation much worse because they will cause you to lose sensitivity to destructive muscle movements.

There is a balancing act which you need to investigate. Look at the issue are you getting enough sleep and how you can catch up with any sleep loss?

[Janclebro]

I have spondyloarthropathy. As far as I know it's a family of autoimmune diseases, including ankylosing spondylitis, psoriatic arthritis etc. They all include an arthritis of the spine, and various other symptoms /joints can be involved. It often is associated with gut problems. Some people don't fit precisely into any one of those diseases, but fit the general family of spondyloarthropathy. My main symptoms are apparently those of ankylosing spondylitis, but I don't fit the typical profile of the disease.

I suggest you look for a support group called Kickas (with one s) and join them. There are over 12000 members and they offer dietary advice which has helped me enormously, as well as discussions about drugs etc. Good luck

[Bakingdeb in reply to Janclebro]

Thank you so much for your reply. It is really helpful & I will look into the group you mentioned. I have had stomach issues for years & also eye infections which last for months on end. I’ve yet to find an effective pain killer that actually lasts more than a couple of hours & also doesn’t upset my stomach. I have low vitamin d & low calcium levels & my dr prescribed tablets to help this. I’m waiting for an mri scan.