Would you ever or have you ever participated in ... - Fight MPN
Would you ever or have you ever participated in a clinical trial? Feel free to reply in order to expand on why you selected that answer.
tclementi7 VotersPlease select all that apply:
I have Myelofibrosis had taken Hydroxyurea for 2 years when my spleen enlarged causing me severe pain. I decided to go to see aDr that specialized in MPN disease . I decided a trial was my best option.
That was in. 2008-2012 the drug was approved by the FDA . Jakafi
I wouldn't be here today if not for the trial.
Hi! Thanks so much for sharing! Yes, I agree, it's very important to see a specialist and am glad you were on the Jakafi trial! How are you feeling today?
I feel great,!
My rbc is low I must get transfusion every month . My platelets dropped very low a couple months ago. My hemo lowered my jakafi from 20mg twice a day to 10 mg twice. My platelets have increased still
Platelets still have long way to go
Sorry, for some reason I didn't see your comments back until now! Glad you are feeling well!