White spots showing up on lip.
leardallan2 months ago
Hi, have had a spot on forehead removed within the last 6 months. It was melanoma situ. One other spot back a number of years ago that turne...
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Myeloma UK 11 years
AJJ1234 months ago
So, my dad’s had myeloma since 2007.
He’s had radiotherapy once and chemo three times.
He’s not doing great atm as his immune system is compro...
BudHyett7 months ago
Multiple myeloma in maintenance phase.
3 Replies1 Like
I'm A Living Donor
rijobaby7 months ago
My self Rijo Baby, from Kerala, India donated my kidney to one of my friend's father on 2011. I m new here. I would like to tell people to d...
multiple myeloma on pancreatic and pelvic as extramedullary plasmacytoma
chen56318679 months ago
Our Mayo Clinic psychiatrist mentioned most cancer patients have the treatment of maintenance chemotherapy in remission after five years, th...
9 Replies1 Like
Brown lines on nailbeds.
Hope5299 months ago
I wanted some opinions on my nailbeds. I’ve done some research on brown lines on nails and my main concern is melanoma. I’ve had the p...
Share Your Tips on Maintaining Emotional Equilibrium
tclementi9 months ago
As a myeloma patient or care partner, how do you maintain emotional equilibrium? Please share! Your strategies could be shared during tomor...
Myeloma Virtual Town Meeting Oct 8th
Join hundreds of others with myeloma and connect with experts Drs. Raje and Orlowski during this Sunday’s virtual town meeting. Send in your...
Multiple-Myeloma Dieting Webinar Next Tuesday!
tclementi10 months ago
Register now for the second in a series of 3 live programs on living with myeloma and helping you with advice for mind, body and soul. This ...
Live From Stanford Med X This Weekend!
Our founders, Esther & Andrew will be presenting this weekend at the prestigious Stanford Medicine X conference on “precision medicine” and ...
Join Us For Myeloma Event this Saturday, September 9th
Get myeloma news this weekend! Please join us for the live town meeting from the UAMS Myeloma Institute in Little Rock - a major center - an...
Mythbusters Is Tomorrow!
Important free educational program tomorrow! There are hundreds of companies researching better treatments for cancer. Some are for YOUR can...
1 Week Until Final Clinical Trial Mythbusters Webinar!
tclementia year ago
Is there medical research going on that is open to you and could be the key to feeling better? That’s what a clinical trial can be, but many...
Free Myeloma Event- join in-person or online
There are several subtypes of multiple myeloma and now experts have strategies for more personalized care. It can be life saving or life ext...
Help us get to 1,000 survey responses!
Please take a few minutes to participate in our Patient Power survey to let us know how we can do better for you. It really help us. If we c...
Daniel-sawea year ago
I lost some sense of touch from my legs on fore feet and the whole body on one side is so cold, I haven't seek any medical advice yet becaus...
Take Our 2017 Survey
Is Patient Power helping you? How can we do better? Share your views and your story in our latest survey. It really helps us help you! surveygizmo.com/s3/3521783/......
Join us & Michael Weitz for a free, live webinar next Wednesday 12 pm PT
In 2006, Dr. Michael Weitz was diagnosed with cancer and given a prognosis of three to six months to live. Now, 11 years and three clinical ...
Have You Had A Problem With Your Medical Insurance?
We recently interviewed Stacey Worthy of the Alliance for the Adoption of Innovations in Medicine about steps patients can take if insurance...
Are you joining us next Tuesday?
We'll be breaking down myths about clinical trials and more! Learn more and register here: patientpower.info/event/myt...
Where Is The Cure Hiding & How Do We Get It?
Government cutbacks in cancer research: what will affect be on you and your diagnosis? Our founder, Andrew Schorr takes a hard look at curre...
Missed Our Webinar? Watch The Replay Now!
Understanding your complete blood count (CBC) results and staying up-to-date on new testing methods could help provide more information abou...
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Share Your Story!
Are you currently on pegfilgrastim (Neulasta Onpro) and want to tell your story? This is your opportunity to help other patients by sharing...
DennisAustin3a year ago
I was diagnosed with this after I felt like I was leaning almost falling over while standing upright
Luckily my hospital has a neurologist wo...
1 Reply1 Like
Register for our Blood Test Results Webinar
Many patients do not understand their blood test results. Over 600 people registered for March 28th webinar to explain. You can join here- patientpower.info/event/web......
Take 5 Minutes to Share Your Perspective!
Dear fellow patient or family member,
For the second year in a row, Andrew has been invited to be a patient representative on the President’s...
RuthGG2 years ago
Is anyone able to give me any idea what the result of my cytogenetics test (11;14, gain of 1q, loss of p53 and 16q) and a 'poor p...
Multiple Myeloma treatments/side affects /90 year old focus
Plankl2 years ago
Need help on side affects
Velcade gave me neuropathy in thighs
Revlibin gave me rash
Just starting Ninlaro
Concerned that clinical studies do n...
What's been your fav Patient Power video this year?
tclementi2 years ago
We’d love to know what your favorite Patient Power program of 2016 was! You can see them all here (https://www.patientpower.info/multiple-m...
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