Daniel-sawe17 days ago
I lost some sense of touch from my legs on fore feet and the whole body on one side is so cold, I haven't seek any medical advice yet becaus...
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Take Our 2017 Survey
tclementi21 days ago
Is Patient Power helping you? How can we do better? Share your views and your story in our latest survey. It really helps us help you! surveygizmo.com/s3/3521783/......
Join us & Michael Weitz for a free, live webinar next Wednesday 12 pm PT
tclementia month ago
In 2006, Dr. Michael Weitz was diagnosed with cancer and given a prognosis of three to six months to live. Now, 11 years and three clinical ...
Have You Had A Problem With Your Medical Insurance?
tclementi2 months ago
We recently interviewed Stacey Worthy of the Alliance for the Adoption of Innovations in Medicine about steps patients can take if insurance...
Are you joining us next Tuesday?
tclementi3 months ago
We'll be breaking down myths about clinical trials and more! Learn more and register here: patientpower.info/event/myt...
Where Is The Cure Hiding & How Do We Get It?
Government cutbacks in cancer research: what will affect be on you and your diagnosis? Our founder, Andrew Schorr takes a hard look at curre...
Missed Our Webinar? Watch The Replay Now!
tclementi4 months ago
Understanding your complete blood count (CBC) results and staying up-to-date on new testing methods could help provide more information abou...
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Share Your Story!
Are you currently on pegfilgrastim (Neulasta Onpro) and want to tell your story? This is your opportunity to help other patients by sharing...
DennisAustin34 months ago
I was diagnosed with this after I felt like I was leaning almost falling over while standing upright
Luckily my hospital has a neurologist wo...
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Register for our Blood Test Results Webinar
Many patients do not understand their blood test results. Over 600 people registered for March 28th webinar to explain. You can join here- patientpower.info/event/web......
Take 5 Minutes to Share Your Perspective!
Dear fellow patient or family member,
For the second year in a row, Andrew has been invited to be a patient representative on the President’s...
RuthGG7 months ago
Is anyone able to give me any idea what the result of my cytogenetics test (11;14, gain of 1q, loss of p53 and 16q) and a 'poor p...
Multiple Myeloma treatments/side affects /90 year old focus
Plankl7 months ago
Need help on side affects
Velcade gave me neuropathy in thighs
Revlibin gave me rash
Just starting Ninlaro
Concerned that clinical studies do n...
What's been your fav Patient Power video this year?
tclementi7 months ago
We’d love to know what your favorite Patient Power program of 2016 was! You can see them all here (https://www.patientpower.info/multiple-m...
Great news wrap up by Experts from ASH
andrewschorr7 months ago
At last weekend's Am. Society of Hematology (ASH) meeting Patient Power got 4 top myeloma experts together to explain what was important new...
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Let us know if you've tuned into our ASH coverage!
Answer in the poll to the right of the home page. And watch it all here if you haven't : patientpower.info/ash2016
Dr Orlowski and others from ASH, Your Questions?
andrewschorr8 months ago
Dear Myeloma friends: I am so excited that ASH is in my new home city, San Diego later this week. And I am also excited we've got a great pa...
Have you ever taken a break from myeloma therapy? Let us know this Forum Friday!
tclementi8 months ago
Is it possible to take a break from your myeloma therapy? Have you done it? Answer our poll to the right and then watch our expert's opinion...
Have you advocated for yourself or loved one to get better care? Let us know this Forum Friday!
tclementi9 months ago
Take our poll on the right and then watch our webinar with a myeloma expert from Mayo Clinic, Dr. Fonseca and Myeloma Crowd founder, Jenny A...
How EHR Vendors Are Improving Patient Safety
Healthcarenews9 months ago
“It is indisputable that EHRs play a key role in improving patient safety,” he says.
Keeping patients safe is a responsibility shared by ever...
It's Forum Friday! Will you join our on 10.25 to learn how to advocate for yourself?
On October 25th, we are joining up with Myeloma Crowd founder, Jenny Ahlstrom and Mayo Clinic's Dr. Rafael Fonseca to bring you a webinar ab...
It's Forum Friday! Have you seen our event replays?
Have you seen our replays (morning and afternoon sessions) of our broadcast this past weekend? Take our poll to let us know. Leave a comment...
It's Forum Friday! Have you ever utilized an oncology social worker?
tclementi10 months ago
Social workers can be very helpful- have you used their help during your cancer diagnosis/treatment? Take our poll to the right letting us k...
Still no answers on going tests for myeloma, questioning Non-secterol myeloma
Ziggs10 months ago
Hi everyone, well as you know I am still going through tests and scans, first X-ray showed multiple collapsed vertebrae kyphosis of spin and...
It's Forum Friday and we're talking about immunotherapy as treatment!
Have you heard of, had immunotherapy or considered it for part of your myeloma treatment plan? Let us know in the poll on the right and then...
Are you attending Patient Power's Myeloma Virtual Town Meeting? Let us know if we will "see you" there!
On October 2nd, we are going to be broadcasting live from MD Anderson to bring you the latest myeloma research and treatment news from exper...
Update on my tests mr myeloma
Hi, just a quick update, Been seen my consultants understudy who sent me for a contrast CT scan, they said my kidney function must be due to...
It's Forum Friday! We're talking about the next year- take our poll with your suggestions!
Patient Power recently came back from our yearly retreat where we plan for the upcoming year. Andrew blogs about it here: patientpower.info/blog/pati......
It's Forum Friday! Let's talk about insurance!
tclementia year ago
Insurance, medicine costs, doctor's visits, hospital stays- it can all get very expensive especially if the healthcare system doesn't offer ...
How Can You Choose The Right Treatment?
Here's a video clip from our recent town meeting at the Univ. of Arkansas where experts explain the available treatments and how they help p...
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