RuthGG2 months ago
Is anyone able to give me any idea what the result of my cytogenetics test (11;14, gain of 1q, loss of p53 and 16q) and a 'poor p...
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Multiple Myeloma treatments/side affects /90 year old focus
Plankl2 months ago
Need help on side affects
Velcade gave me neuropathy in thighs
Revlibin gave me rash
Just starting Ninlaro
Concerned that clinical studies do n...
What's been your fav Patient Power video this year?
tclementi2 months ago
We’d love to know what your favorite Patient Power program of 2016 was! You can see them all here (https://www.patientpower.info/multiple-m...
Great news wrap up by Experts from ASH
andrewschorr3 months ago
At last weekend's Am. Society of Hematology (ASH) meeting Patient Power got 4 top myeloma experts together to explain what was important new...
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Let us know if you've tuned into our ASH coverage!
tclementi3 months ago
Answer in the poll to the right of the home page. And watch it all here if you haven't : patientpower.info/ash2016
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Dr Orlowski and others from ASH, Your Questions?
Dear Myeloma friends: I am so excited that ASH is in my new home city, San Diego later this week. And I am also excited we've got a great pa...
Have you ever taken a break from myeloma therapy? Let us know this Forum Friday!
tclementi4 months ago
Is it possible to take a break from your myeloma therapy? Have you done it? Answer our poll to the right and then watch our expert's opinion...
Have you advocated for yourself or loved one to get better care? Let us know this Forum Friday!
Take our poll on the right and then watch our webinar with a myeloma expert from Mayo Clinic, Dr. Fonseca and Myeloma Crowd founder, Jenny A...
How EHR Vendors Are Improving Patient Safety
Healthcarenews4 months ago
“It is indisputable that EHRs play a key role in improving patient safety,” he says.
Keeping patients safe is a responsibility shared by ever...
It's Forum Friday! Will you join our on 10.25 to learn how to advocate for yourself?
On October 25th, we are joining up with Myeloma Crowd founder, Jenny Ahlstrom and Mayo Clinic's Dr. Rafael Fonseca to bring you a webinar ab...
It's Forum Friday! Have you seen our event replays?
tclementi5 months ago
Have you seen our replays (morning and afternoon sessions) of our broadcast this past weekend? Take our poll to let us know. Leave a comment...
It's Forum Friday! Have you ever utilized an oncology social worker?
Social workers can be very helpful- have you used their help during your cancer diagnosis/treatment? Take our poll to the right letting us k...
Still no answers on going tests for myeloma, questioning Non-secterol myeloma
Ziggs5 months ago
Hi everyone, well as you know I am still going through tests and scans, first X-ray showed multiple collapsed vertebrae kyphosis of spin and...
It's Forum Friday and we're talking about immunotherapy as treatment!
Have you heard of, had immunotherapy or considered it for part of your myeloma treatment plan? Let us know in the poll on the right and then...
Are you attending Patient Power's Myeloma Virtual Town Meeting? Let us know if we will "see you" there!
On October 2nd, we are going to be broadcasting live from MD Anderson to bring you the latest myeloma research and treatment news from exper...
Update on my tests mr myeloma
Ziggs6 months ago
Hi, just a quick update, Been seen my consultants understudy who sent me for a contrast CT scan, they said my kidney function must be due to...
It's Forum Friday! We're talking about the next year- take our poll with your suggestions!
tclementi6 months ago
Patient Power recently came back from our yearly retreat where we plan for the upcoming year. Andrew blogs about it here: patientpower.info/blog/pati......
It's Forum Friday! Let's talk about insurance!
Insurance, medicine costs, doctor's visits, hospital stays- it can all get very expensive especially if the healthcare system doesn't offer ...
How Can You Choose The Right Treatment?
Here's a video clip from our recent town meeting at the Univ. of Arkansas where experts explain the available treatments and how they help p...
It's Forum Friday & we're talking about care partners!
Who's your primary care partner? Or are you a care partner yourself? Let us know in the poll on the right.
Then check out Sheryl's blog abou...
It's Forum Friday! Have you had a transplant as part of your myeloma treatment? Let us know in our poll and then watch this new video!
tclementi7 months ago
Video with Myeloma Expert, Dr. Morgan of UAMS...
It's Forum Friday! Tell us if you're going to be watching out myeloma town meeting tomorrow LIVE from your computer!
Tune in to get the latest research and treatment news from experts right from the comfort of your own home! It starts at 10:00 am CT and you...
Let's talk about clinical trials this #ForumFriday plus a special announcement!
Clinical trials are a way to get cutting edge medicine and help advance research but most patients don't enroll on one. Why is this? Answer ...
offthecush8 months ago
I'm new here but have been sending in reports via stuff.co.nz from there go to stuff nation and find me reviewing Elton John albums alongsid...
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Share Your Thoughts about Clinical Trials- Take Our Survey
tclementi8 months ago
Patient Power’s Andrew Schorr will be speaking again before another major audience – this time in Boston on July 21st to heads of research a...
Halfway through 2016! Tell us how you've bettered yourself in this Forum Friday poll!
Back in January, we asked what you could do to be more powerful in 2016 by taking charge of your health and well-being? Maybe it was continu...
Let's have a Moonshot discussion after the Summit this Forum Friday!
This week, Vice President Joe Biden held the Cancer Moonshot Summit in Washington DC where medical leaders, patients, advocates, companies a...
It's Forum Friday and we're talking about your relationship with your GP (general practitioner)
Having a good relationship with your GP is important, especially if they were the ones that first diagnosed you or if it's easier to see the...
It's Forum Friday and we are talking about cancer drug costs!
Answer our poll to the right about cancer drug costs that will segway into Andrew and Esther's Facebook Live event this Monday June 20th at ...
MargaretG8 months ago
Diagnosed with MM in 2006. My symptoms where only foggy vision. After 9 months and multiple tests it was a diagnoses of Multiple Myeloma. th...
12 Replies1 Like
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