How do negative messages about CLL you... - CLL America Support
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I'm not much affected because most of the negative information does not apply to me. When I was diagnosed, a family member in the cancer field assured me that I should relax. CLL was not usually fatal. My (beloved and highly respected) oncologist gave me a similar message, reinforced by the slow growth in my numbers. Both individuals assured me that treatment options were excellent and expanding quickly. Now, after eight years, I'm undergoing treatment, and judging by my numbers, treatment is working. My fatigue over the past year has been difficult and increasingly debilitating. But I am grateful every day that I have compassionate and effective health care, that the treatment is working, and that I can look forward to at least a few more post-treatment years in remission.
i was shocked the day my oncologist told me that I was a CLL patient after seeing my reports. I I was assured by him that though not curable ,but can be managed . he explained about the developments/research taking place for better treatments.. Still under watch and wait since three and half years. I am from India , sad part is not much research is done here. I am yet a come across a good CLL expert.This forum had given me an excellent boost and feel greatly relieved . At times when I read some negative reports , I do get depressed , but after reading positive reports and advice of CLL expert doctors in this forum I feel great.
I hope that I get a better treatment here when I am due. My numbers are increasing with enlarged lymph nodes in neck and stomach ,but no 17p deletion,mutated,no night swetas, no fatigue, no fever , not much weight loss.