Does anyone have (or have had) clear cell cance... - My Ovacome
Does anyone have (or have had) clear cell cancer? I'd be interested to know your experiences. I am currently concerned about recurrence.
To Sara L
I to had a clear cell tumour, mine was called Adencarcinoma of the ovary, they are the rare types of tumours and they dont know alot about my suptype, [ I dont know what your kind your clear cell was] as there is so many, they are the second worst type to have,they can come back because they are so much more aggresive, but they are no worse than they other types of ovarian tumors as they all can come back or most anyway,.but like I said there is very little data on clear cells. hope this helps when you see your onclolgist just ask him about yours I'm sure he will give you a good idea what your type is and if it is most likely to come back, sadly with this type of cancer there is a 60-70% recurrence.
all the best Sarah .P
Hi Sarah!
Are there any signs that your health is not right at the moment? All of us cancer survivors fear the worst sometimes, but the statistics are getting better and better. I think a lot depends on how early your cancer was diagnosed and treated. Mine wasn't clear cell but it was 9 years ago. There are a lot of us on here who keep on going on and on ... 
Try to ring the Ovacome nurses on the helpline on Monday if you have any worries. They are so knowledgeable about ovarian cancer and will give you a better picture than any of us patients can. Their number is 0845 3710554. You can leave a message and they will ring you back.
Keep thinking good positive thoughts, and enjoy the weekend. You may be worrying unnecessarily. Hope so!
Love Wendy xx
Sarah, mine was adenocarcenoma, too! I can't find very much material on the internet about this - clear cell carcenoma, yes, but not adenocarcenoma. As you say, the data is limited. I wish I could read Japanese and then I could find out what the research is in Japan, where there is a higher incidence of this cancer. What stage and grade were/are you? What is your position now?
Wendy, thanks for this. I do have a picture of sorts now - I research as much as I can. What I really want now is to find other people with this particular sort of cancer to see what their story is. I realise everyone is different, but it gives me to some extent other people's take on this experience.
I am having abdominal symptoms, which I am hoping is from inflammation, which I know I have (from the second operation - hysterectomy etc). However, I will have another CT scan this coming week. I was initially worried about the amount of radiation in these scans, but have read an article published yesterday that they may not be nearly as risky as previously thought.
medicinenet.com/script/main..., in case anyone is interested.
As for worry, I'm guessing most people who have experienced cancer will worry that it will return. I need to be vigilant, not for my sake but for the sake of my small family. My daughter is three and my son is almost 22 months. They have already had a rollercoaster of a year. Yes, let's hope it's concern about very little!
Aah, where's that glass of wine? xx
