Hi is there any sucess stories of people who ha... - My Ovacome

My Ovacome

17,746 members19,983 posts

Hi is there any sucess stories of people who haven't had the BRAC 1or 2 gene thanks

Molste profile image
13 Replies

Diagnosed Jan 2024

Written by
Molste profile image
Molste
To view profiles and participate in discussions please or .
13 Replies
Morini profile image
Morini

Diagnosed in 2021 with high grade 4a. BRACA 1 & 2 negative but HRD positive. I had chemo, surgery, chemo and Avastin. My tumour analysis took a long time and I missed the cut off date for maintenance PARPS so I've been treatment free for a year. Currently NED, so still here leading a full life. Keep the hope!xxx

Molste profile image
Molste in reply to Morini

Thank you

Leniko profile image
Leniko in reply to Morini

❤️🙏👍🏻👏🏼

Ydaff profile image
Ydaff

Hi Molste,

I’m not sure what you class as a success story, but I was diagnosed as Stage 4b, BRCA negative at the beginning of 2020. Had a few ups and downs, but at present on Niraparib and doing well on it. I am enjoying life - last year I had 2 holidays in Portugal and hoping to holiday again this year. I do have ‘off’ days, and I know my cancer is incurable, but I am still here and able to enjoy love and laughter with my family and friends - for me that’s a success. Good luck with your journey.

Molste profile image
Molste in reply to Ydaff

Thank you

Eriksendi profile image
Eriksendi

I was diagnosed in 2017 stage 3b HGS ovarian/PPC , BRACA negative. No maintenance as they didn’t give it then unless you’d had a recurrence. I’m still here and doing well, various surgical complications with my bowel and digestive issues but enjoying life and feeling well in myself . Good luck with everything x x

Molste profile image
Molste in reply to Eriksendi

Thanks

Lizzieanne profile image
Lizzieanne

I was diagnosed in 2002 with stage 2c Had operation and six treatments of carbo and taxol. I am BRACA negative. No treatment for 18 years but recurrence in 2020.

Molste profile image
Molste in reply to Lizzieanne

Thanks

I was diagnosed in Oct. 2019 with stage 4. I don’t have the braca gene ( negative), but I was on Niraparib for 3 years after chemo and debulking op. I’m still NED for 41/2 years now. The niraparib dose was lowered to 100 mgs., but I still had side effects that were bothersome. On and off . Sometimes I wonder if I could have stopped niraparib after two years instead of three years. I see a hematologist now, because of anemia from the drug. My last blood test was better, so that is good. Sending best wishes xx

Lizchips profile image
Lizchips

I was diagnosed in April 2014, I had 18 rounds of chemo including IP chemo, interperiteneal chemotherapy also called stomach wash chemotherapy. I just celebrated 10 yrs cancer free with no reoccurrence. 💜 Liz

Molste profile image
Molste in reply to Lizchips

Hi Liz chips,thanks for replying is clear cell similar to mucinous and did chemo work for you by your results I'd say yes

Lizchips profile image
Lizchips in reply to Molste

I'm not sure how similar cancer was, but I've have been fortunate . That question you would have to ask your Dr. I was diagnosed stage 3c2. Advanced cancer. 💜 Liz

You may also like...

To women who haven't had recurrences

I'm BRCA 2 positive. I was diagnosed in April of 2015 Stage 3C, have had two recurrences and am...

Being crushed by people who are supposed to be supporting me-no thanks.