Rucaparib

[Cazbird]

Hi everyone, I haven't posted for a while. My consultant is starting me on rucaparib on Friday. Just wondered if anyone has had experience of it? X

[win_56]

Yes started November high doseage 1200mg. Unfortunately my body could not tolerate it, platelets and Hemoglobin dropped dramatically and I felt awful had stomach issues etc. Came down to 1000 mg, same thing happened, bloods not good. Came down to ,800 mg blood transfusion now down to 600mg. Feel like I've been off more than on this parb. Just hope my bloods hold out as was not NED when started. My stomach is a lot better. Oncologist put me on this particular parb as said less side affects and kinder to bloods and would only have to have bloods done every 4 weeks but never had so many hospital visits. Well this is my experience but I know persons whom have been on the full dose and have been ok. Everyone is different and you may do well and even if you have problems there is always room to drop dose. Wish you all the besf.

[Cazbird in reply to win_56]

Thanks for letting me know. Im sorry your body wasnt able to tolerate it. Hope the 600mg works for you. Going to give it a go. Interestingly my starting dose is 600mg. Take care xx

[JustKBO in reply to Cazbird]

Hi. I’ve been on it for a year. I started high but had platelet issues so reduced to 600 mg. Very few side affects cf chemo ! My bowels can be a bit awkward, I get thirsty and get itchy patches but it’s all manageable. Good luck.

[win_56 in reply to Cazbird]

I think that they should start everyone on the low/ middle dose and work up. Makes more sense. I hope you do well Rubraca.xxx

[tarney in reply to win_56]

Taking 300 mg once a day after "downsizing" from higher dosages. Doing relatively well over the past 2 years. Theresa

[27-359]

I have been On Rubraca for three weeks now, 1200 mg a day. So far, the only side effect is crushing tiredness. I had my bloods done last Sunday so should get the results today and will know a bit more.

Jenny

[Caleda4]

Hello, I started on full dose before Xmas, but I felt awful, very dry mouth and throat and could not eat. So I came off that for 4 days and started on the lowest dose 600mg per day which was fine. Gradually I am moving up so at the moment I am on 800mg a day, but I am going to try 1000mg a day from next week. On 800mg I have been fine, bloods ok etc. I am hoping therefore that 1000mg will be ok. I did have itching on lower legs and arms for a few days,and my Oncologist said it was safe to take a portion tablet. As it only lasted a few days I was ok . My CA125 was 10 at my last blood test. I hope that things go well for you ,as everyone is different. Take care.

[Gemimablackvelvet]

I started Rucaparib a year ago this April. I don’t remember any remarkable side effects except a tummy ache here and there but unfortunately it didn’t work for me so I started Taxol in October 2020. It works for many people so I really hope it works for you.

Love from

Angela

[JustKBO in reply to Gemimablackvelvet]

Hi Angela. How are you? I’m on day 2 of a “downer”. Really worried that my kidney is backing up again and dread the thought of another nephrostomy 😕.

[Gemimablackvelvet in reply to JustKBO]

Really really sorry you’re on such a long downer. It’s so difficult to find an answer for you. The thought of your kidney packing up is hard to imagine. Another lady on here is having a similar worry but not about particularly about the nephrostomy but about the kidney function. Again, one thing after another. I’m worried about the liver nodules and don’t know where to turn. I’ve just got to wait until I see the oncologist on Friday. It’s no use telling you to phone your CSN as I find they tend to say wait til you see the oncologist. That can seem like an eternity but you could try. That’s what they’re there for to help you and make you feel better. Are you having repeat symptoms? The constant worry is so impossible to deal with as only we know what it’s like. I wish I could lift your spirit. All I can say is you’re not alone. Most ladies on here will have bad days and good. A trouble shared is a trouble halved. I find having a really good cry gets it out of me. I phoned a friend on Monday and couldn’t speak for crying. I’ve never done that before. I felt so much better after. Don’t try to hide your feelings. You’re so entitled to pour your heart out.

Loads and loads of love and care.

Talk to me and the wonderfully well informed Healthunlockers anytime. I have plenty of time on my hands.

Angela xx

[Gemimablackvelvet in reply to Gemimablackvelvet]

Dear Maria, I’ve just been reading your post from 5 months ago. I don’t realise what hell you went through. No wonder you’re so worried. It may be a much better outcome than you’re envisioning. Try to cast it out of your thoughts. Everything will seem better tomorrow. Love Angela xx

[JustKBO in reply to Gemimablackvelvet]

Ah Angela you’re such a darling. Thank you I’m feeling far better now and the flank pain has lessened. I’m continuing to drink water and someone has suggested milk thistle so I shall get some tomorrow. I wish you and everyone a peaceful nights sleep. Nite nite. X

[Gemimablackvelvet in reply to JustKBO]

Nite nite Maria, I wish you the same Love from Angela xx