Friend on taxol now , suffering burning hands ... - My Ovacome
Friend on taxol now , suffering burning hands and neuropathy . Any ideas to help aleviate these side effects ? Thank you all out there !
Hi I have had 2 complete courses of taxol .one in 2009 and the 2nd in 2011 ,with both I suffered with sharp stabbing pain and burning in my right leg . When I asked my oncologist he told me that was a side effect from the taxol and there was 2 options it would either stop once taxol had finished or I would have it for life also that it would affect my dominant side ,so for me I am right handed it still affects my right side even after all this time.I tired everything,pain killers I even sat in a hot bath for hours until I was bright red , nothing really worked ,it did ease with oaty heat pads that you put in micro .Still suffer with it now and use the heat pads again .Sorry to be the bearer of bad news but thought it better to be honest .annette
Oh Nettieanne , thank you so much for swift response , and honesty . I have finished third regime of chemo recently and whilst having typical exhaustion and have had neuropathy , have coped ; but poor sister in law is suffering from blistered hands and burning sensations everwhere ...had hoped to be able to offer her comfort , but thank you for your honesty. As we all do on this site , I wish you better days .
Hi I have had 2 courses of taxol as well first in 2008 then2013 Both times I had neuropathy in my fingers but it went away shortly after finishing treatment Just like everything to do with this disease everyone is different
Thank you ; yes, my neuropathy has gone too ...it is the blistering, burning skin of sister in law that is distressing , but you are quite right , everyone responds differently .
I had (still have) neuropathy after having Carbo/Taxol and pains just about everywhere but a burning sensation in hands and feet is more in line with side effects of Caelyx, now I am on third line chemo Carbo/Caelyx I am told not to add heat but keep my hands and feet cold ( or cool ) I wonder if this would help? I was also advised not to put my hands in hot water and have cool showers and not to drink or eat anything hot but tepid. Best wishes love x G x
Thank you for input ...every bit helps . So sorry that you are still suffering with neuropathy...fluffy bedsocks have helped me , funnily enough ! Worth a try .x
Yes this would help if I wasn't on Caelyx I am advised not to wear socks or gloves and keep my feet as cool as I can because of the type of chemo I am having at the moment love x G x
Best wishes to you Gwyn on your 3rd line.... just have to say I love your poetry. I've been watching from a distance recently but here I am back in the fold. Linda xxx
Thank you Linda, for this encouragement, unfortunately there hasn't been many happy poems lately.
Welcome back in to the fold, it is good to see you on here, I know you have had a bad time, but hope the good weather and beautiful sea air has helped in your recovery. 
I love Anglesey ( I live in Chester ) best wishes love x G x
I am sure there will be many more happy poems coming soon. Thanks for the welcome back...just hope to keep it up. Just spent so long updating my profile and lost it all....need to update my photo...new white hair growing now...Struggling with the new site!! Yes haven't we had a wonderful summer...it makes a difference. Anglesey is a beautiful place but quiet. I love Chester...you have shops and lots to see and do. Love Lindyloo xx
During and after carbo/taxol in 2008 I had neuropathy in my hands and feet...so painful but several months after the chemo it went away. In 2011 I had the same treatment and afterwards I unfortunately still had neuropathy when starting my 3rd line of carbo/taxol but certainly nowhere near as bad. I finished 3rd line in March (I suffered during/after treatment again) and it's not gone away now but it certainly has eased a lot. I was told no heat...not even hot waterbottle etc on affected areas....to use socks in bed (I was never without my socks!). Avoid extremes of hot and cold. The blistering is a concern, I have not heard of that before and think your sister in law should contact the specialist nurse at oncology department to put her/your mind at rest.. Best wishes. Linda xx
p.s. The treatment has affected my bones also
Gosh , you've been through the mill ; I am so sorry...but you sound so positive ; I have all the bone pain too ...keep telling myself , it's my age and the weather ! But it's a miracle that we are able to all communicate ,so thank you .
Sister in law has now seen nurse and is in cotton gloves and cream , like caelyx .
All best wishes to you xx
So glad your sister in law is sorted and I'm sure she will be feeling some relief. We all have so much to put up with but so many on this site give me inspiration, I do everything I can to stay positive but we are all allowed our off days. Very best wishes to you and sister in law xxxx
Hi -I am almost 3 mths on from my taxol/carbo treatment. I had carbo only 2 yes ago. Had all the normal things , hands were fine but burning feet, legs and pain in the right hip were the worst. I found putting my feet on the hot water bottle filled with cold water really helped with feet, and a hot wheatie bag down my right side, which was rumbling. Still have slight burning feet, some night sweats, and side rumblings with pain in right hip. My worry is that I had all these symptoms when the cancer came back, and although my scan was clear in July, they worry me - so its reasurring to read that it takes awhile for effects to disappear. Best of luck to all.
Yup ! The anxieties and worries are difficult to put aside ; but the side effects will hopefully subside in time . You read amazing stories on this site , of strength and endurance ...just amazing .
Best of luck to you , too .
When I had problems with my hands and feet, I put them in cold water and then my cancer clinic gave me a cream to put on them that really helped. Triamcinolone Acetonide Cream USP which is a prescription creme. I also took R Alpha Lipoic Acid that helps with neuropathy side effects. Check with you doc or look up on Sloan Kettering Cancer website for supplements and cancer interactions. Hope you get some relief.
