I was diagnosed last May (2017) with a tumour were oesophagus meets stomache. I had chemo for 3 sessions and the the operation last October and then 3 more sessions of chemo.
The surgeon said it was touch and go but they got it all out
I did get 2 bad infections in wounds, 1 in front wound and 1 in rear wound while in hospital which took a while to get rid of. They had to remove staples from front one and pack it everyday.
In the area of the front one it still feels like someone is sat on my chest sometimes, Nurse said is is probably deep scar tissue due to the infection
It is not a problem just takes getting used to and it hurts when I sneeze or cough, under my arm gets a sharp pain aswell when I sneeze or cough.
The thing I find difficult now is eating.
As the operation changes your insides, the way your stomzche sits you can not eat normally.
You have to eat little and often and this takes some getting used to, I still have not mastered it and it causes problems.
Before the operation I had a good job and did a lot of travelling and had enough money to take time off and rest but now I would like to get a job but the eating is a problem.
What kind of job can I get where I can eat any time I need to but also I can not eat same thing 2 days in a row, for instance I can have a slice of toast one day and be fine but next day eat a slice of toast and it mskes me feel sick, the feeling sick is trapped wind and it can take an hour or more to feel ok. When it happens I have to sit or better still lay flat and try to get wind up.
I think in the operation the part of oesophagus that controls being sick must have been removed because I can not be sick
It is difficult to explain to people when it happens.
The other problem I have is I dont have normal bowel movements, I have to tske laxatives every night ans some times they don't work, but when they do I need access to a toilet straight away.
Could the symptoms I have with eating problems be classed as a disability?
I do get ESA but that stops next month as they said it only lasted a year and I did apply for PIP and did have enough points but they said I wasn't going to be ill long enough. I have appealed but waiting for a date but don't hold out much hope of it being successful with some of the stories that have been in the news lately of people being not far off dying of cancer and being refused it.
I have to eat breakfast and evening meals as I am also diabetic and have to take meds with a meal twice a day even though some days I don't want to eat.
Anyway enough about me.
To anyone reading this eho is waiting for the operation, try not to worry about it and everything will be fine. Just take each day as it comes.