I had a total gastrectomy 25 months ago now and continue to have swallowing issues with both eating and drinking where it is painful and it seems it is where the join is that causes the problem, due to this I am staying around 10 stones plus or minus having lost 4.5 stones previously 2 when in hospital and 2.5 after came out, been steady now for some while. Quite often I bring up the first couple of mouthfuls of food mainly with the evening meal and can then eat after that.
I also suffer with bile reflux that comes and goes during the day and a cough and bringing up phlem with small amounts of bile most nights.
In addition I get what I can only describe as a grating/burning feeling in the oesophagus on and off at different times, it feels like someone is scraping sandpaper inside me if that makes any sense. I take Omeprazole 2 x daily 20mg, Domperidone Motilium 3 x daily 10mg, Colestyramine Powder 2 x 5g sachet mixed with water but must admit not taking this as much now as pretty horrible stuff, Gaviscon Advance 5ml 3 x daily and Paracetamol 2 tablets 2 x daily and add others when needed.
Is there anyone out there who has had a total gastrectomy with the same or similar issues?
I would be interested to know how you are coping and if there is anything else that I could take to help the bile reflux.
As far as the swallowing issues go originally I was told it would take 16 months, then 2 years, then 3 years and now possibly will have to live with it.
Any comments appreciated.