Stage four ….

[Vitex]

I had chemoradiation for oesophogeal cancer in late 2023, not seen as suitable for operation. Now have metastases to ureter ( not v usual) and am about to start more Folfox with Nivolumab for three months. Seems the prognosis depends on how well I respond to this treatment. Anyone with similar experience able to pass on any thoughts etc?? Thank you

[tinabrown196]

My mets where in my lung, they did manage to remove but I am on cycle 66 of tranzumatab (3 1/2 yearsafter being given the status of palative) my cousin who trialed this drug 7 years ago who had extensive mets no surgical options is still here and well stay positive.Only suggestion make sure you take as much refined sugar out of your diet replace with natural replacements such as honey maple syrup, our cancer is a sugar fed one may help with slowing its progress Good luck

[Vitex in reply to tinabrown196]

Thank you for this. Have been hearing and seeing quite a lot of gloom so good to hear some positive stories. Point taken re honey etc and in fact I am trying to move to a mostly macrobiotic diet.

[Artiquety]

Have you tried Macmillon, they have a website of hospitals that may have New Cross trials- that you could be suited to?I personally would always ask for a second opinion from a different hospital-sending healing hugs, good luck.

[Vitex in reply to Artiquety]

Thank you. I am based in France so Macmillan isn’t a thing. But you have reminded me to ask about trials again.

[Artiquety in reply to Vitex]

Aww I’m sorry, I do hope that they have some sort of immunotherapy trials, coming your way, my friend in Finland is stage 4 lung cancer and won’t have chemo-but is having radiotherapy and immunotherapy treatment that has kept her stable for several years now, she’s doing ok.

[Vitex in reply to Artiquety]

Thank you. I am having combo of chemo and immuno so 🤞🤞🤞