Prolonged QT syndrome

[Calerine]

Does anyone know if this is important. Thank you.

[medway-lady]

My husband has this and sees a Cardiologist. He's at golf today and I don't know much about it. I can ask him when he gets back.

[Calerine in reply to medway-lady]

Hello Medway lady. That's very kind of you. Much appreciated.

[medway-lady in reply to Calerine]

He has an implant to monitor his heart that goes with a sort of phone. If he feels breathless or gets any symptoms he pushes the phone and holds to his chest. It goes in live time to the Cardiology Dept who can monitor or call him in. The Cardiologist is monitoring so far to decide what to do next as he has a sticky valve but there is a new medication he can have. So it depends on next few months. He's fine he said and it's a big scary at first but he thought it was indigestion and clearly isn't. So now if it's been confirmed you'll be looked after. The monitor was put in under local anaesthetic and he's had other stuff tested at the same time like sleep clinic. He is very well and still playing golf, only pushed the button twice in past six months but they wrote to our son's GP to say he must be tested. I hope that helps a bit.

[Calerine in reply to medway-lady]

Hello Medway lady. Thank you ever so much for the information. Great to hear your husband is doing well. Best wishes to you both Calerine.

[skinclinic]

bhf.org.uk/informationsuppo...

Hello Calerine

I worked in an NHS Cardiovascular dept for 35 years and i was involved in a research project into Prolonged QT syndrome

I hope the link I have provided above will be helpful

I think it says most of what I know rather than me typing it all out to you

It is an inherited disease that can be fatal but the fact that you are under medical care will mean that the appropriate treatment will be provided and you will be well monitored and cared for

There are other add on types of PQT syndrome including Romano Ward type that is also genetic and is associated with deafness

These days it has been highly researched and the prognosis is good

The best diagnosis is firstly the symptoms but an electrocardiogram will indicate its presence

Feel free to pm me if necessary

[Calerine in reply to skinclinic]

Thank you very much skinclinic. I asked my gp why my ecg results say normal, but it was put under problem in my notes. She said " were not allowed to comment on the electrical activity of the ecg." That's the last I heard of it. Kind regards Calerine.

[skinclinic]

no problem for me I did a 2 year research programme on it in my younger years . If you are allowed a copy of that ecg I can confirm yes or no as far as an ecg goes . But if it had been definitely diagnosed by a cardiologist - treatment via the appropriate medication will be necessary

[Calerine in reply to skinclinic]

Hello skinclinic. Thank you. That's very kind of you. I've tried sending my ecg but don't know what happened. I'll try again. Thanks. Calerine.

Pink

[skinclinic in reply to Calerine]

Looks like I’ve received part of a 12 lead electrocardiogram … avr avl avf . V1 V2 and V3 which is enough to assess the QT interval

I also note that the ecg machine has automatically measured the QT interval and then corrected it to the QTc interval as in Bassetts formula which then corrects it to the heart rate at the time

I will look at it in more detail when I get home and get back to you

[skinclinic in reply to Calerine]

assessment

The electrocardiographic QTc is approximately normally distributed in the general population. Normal values for the QTc range from 350 to 450 ms for adult men and from 360 to 460 ms for adult women; however, 10%-20% of otherwise healthy persons may have QTc values outside this range.

To be honest you look to fall within the normal criteria … albeit neat to an upper limit of normal . The actual diagnosis will depend whether you have symptoms …. Or not . Keep in touch . Ask anything . No question too silly . Gillian

ncbi.nlm.nih.gov › P..

[Calerine in reply to skinclinic]

Thank you. Cath

[skinclinic]

Hi I have received it . Looking at QT interval now