Stopped prednisolone : Morning all. I was taking 5 mg... - NRAS

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Stopped prednisolone

Esmereld profile image
19 Replies

Morning all. I was taking 5 mg for about a year and then it’s taken me about another year to get down to the level I have been at recently. So for about 10 days I’ve been taking 1mg/2mg alternate days. Yesterday, I should have taken 2 mg but got sidetracked and didn’t take them. I’ve never done that before. I take them religiously. Obviously want to get off them. Has anyone stopped dead at this stage?. I’m not suffering and they’re right next to me and I’m thinking that it might be God’s birthday present (tomorrow) to finally finish with them. 💫⭐️💐😂🤣

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Esmereld profile image
Esmereld
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19 Replies
Lolabridge profile image
Lolabridge

Congratulations on getting down to such a low dose. Why don’t you skip the dose today and take just 1mg tomorrow and carry on like that alternate (zero then 1) for a week and see how you feel? I wish you luck. I’m down to 2mg and will be trying 1mg from next week.

Esmereld profile image
Esmereld in reply toLolabridge

What a great idea. Thank you.

Mmrr profile image
Mmrr in reply toLolabridge

This sounds like good advice....

Deeb1764 profile image
Deeb1764

I have just stopped dead but this was at the start of my RA journey and got kick back. I am now down to 6mg and next week 5mg. Once I go under 5mg my GP knows I do what is right for me. However if in doubt check with your GP. You will know if it is affecting you quickly but like Lola has said maybe one day on and one day off for a week and then stop. But GP check worth doing.

Esmereld profile image
Esmereld

Yes, I was wondering how quickly I might be in trouble. It’s tricky isn’t it and as we all say so often “everyone is different”! 😁.

sylvi profile image
sylvi

Well done you, i have been on 5mgs for as long as i can remember. I have to take more when i have a infection on my chest which sadly is more often. We can't tell you what to do, but i think you know what your going to do and i think if i had got down to that dose i would do the same. xxxx

Esmereld profile image
Esmereld

Thanks Sylvi.

Esmereld profile image
Esmereld

Thank you.

medway-lady profile image
medway-lady

Good advice from Loabridge. I went from a very dose dose (but not for RA) and it was hard so well done you.

Esmereld profile image
Esmereld in reply tomedway-lady

Thanks. It’s been a couple of years.

allanah profile image
allanah

I wouldnt personally. First id check with doctor as missing a few days could affect your body badly. Then Id continue to taoer off as per instruction. Its quite dangerous to just stop suddenly , even though youve been tapering slowly, follow the doctor instruction for me x

Esmereld profile image
Esmereld in reply toallanah

Yes. I think you’re right. I’ve taken one this morning. I only missed one day. I’ll just take the tapering slowly. Thank you.

Neonkittie17 profile image
Neonkittie17 in reply toallanah

Correct 💗 Even though I was reduced to 2mgs after a long taper from 20, I was told to do a much slower taper at the end over two months by my very senior rheumy, so I don’t think either it is ever a good idea to drop/stop suddenly and it should be communicated better to patients and ensure they understand. All tapers were on my prescriptions labels and they had to use two box labels to detail the taper! x

Esmereld profile image
Esmereld in reply toNeonkittie17

Thanks. I’ve had lots of great advice. We’re lucky to have this forum eh!

Neonkittie17 profile image
Neonkittie17 in reply toEsmereld

We are indeed, but as others have said and I echo, we are not doctors but our experiences can be very helpful indeed and give each other a lot of hope and comfort. 💗

Gnarli profile image
Gnarli

I can't add anything to add to the views already given but wanted to wish you a very happy birthday for tomorrow

Esmereld profile image
Esmereld in reply toGnarli

Thank you 🥰

Neonkittie17 profile image
Neonkittie17 in reply toEsmereld

Happy birthday for tomorrow 💗

Esmereld profile image
Esmereld

Thank you. ❤️ We can’t do much but I’ve bought some cheese and nibbles and Champagne for the few friends I know will pop by. We can have a mini party.

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