Sarahha

[sarahha]

Hi. Just been put on leflunomide any info on it would be appreciated from anyone on it as well.

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If you type leflunomide into the search box it will come up with all the posts referring to that. There have been a few recently 😊

[Triple07]

Hi 👋🏻 just started it yesterday too, tried sulfasalazine with no ill effects but didn’t seem to do much, then added in Methotrexate tablets then injection, was as miserable as sin then was admitted to hospital with viral meningitis and took off everything. Now starting on Leflunomide. I see weight loss is listed as a side effect, i was pleased but after being to the toilet repeatedly over the past 24hrs i know see why 😩

Anyone able to say if this settles?!

[Sarah_89]

Hey,

There should be plenty of info on the sheet provided with the medicine, but as Kitty mentioned there will be lots of posts on leflunomide if you search for them in the search box

Anecdotally, I've been on leflunomide for many years now and never had any side effects with it. Maybe a bit of an upset stomach when I first started it as Triple says, but that went within a couple of weeks. Nothing at all after that.

Good luck, after failing on methotrexate it has been a great drug for me, hopefully you will find the same!

[sarahha]

Thanks no side effects yet keeping fingers crossed

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Been on it for years, no problems apart from High Blood Pressure. This booklet (downloadable) will tell you all about the many drugs available for RA including Leflunomide. nras.org.uk/publications/me...

Take it alongside MTX

[Pawz4me]

I've been taking leflunomide for about five months now, when it was added in to my treatment plan along with methotrexate. I can't say that I've noticed any side effects from the leflunomide. My RA is still noticeably there, but it's significantly better than it was on methotrexate alone.

[pd118]

took me out of flare love

[Beviejon1]

I have been on it for about 2 hrs now.No side effects and my RD is doing ok.

[sharpedge]

Been on Leflunomide for nearly three months, trying to combat PMR, rheumatologist is still trying to suss out what’s wrong with me. In addition I take 10mg Prednisolone per day.

Initially I suffered bad headaches, so started taking pills in the evening and that seems to have solved the problem, my thinking being that I’ll be asleep not long after taking the pills.

I still have loads of aches so can’t say that leflunomide has made much difference. I will be seeing the rheumatologist next week (3 months after starting leflunomide).

I stuck strictly to the alcohol ban until a couple of weeks ago when I’ve started having a couple of glasses of wine in the evening! Assume my next blood test will show if it was a mistake.