Beth

[Beth72]

Hi everyone who only takes benepali without methotrexate

[Deniseelk]

Hi, I have taken Hydroxychloroquine from diagnosis. Added Methotrexate for 5 1/2 months but couldn’t tolerate the side effects so stopped it and added Benepali. Been on it since end October. Only had to have a steroid shot in finger few months ago due to inflammation not going away. Recently reduced the a Hydroxychloroquine from 400 mg to 200 mg daily ( my choice as slight concern regarding eye health due to long term use and pretty sure it isn’t having any great part in holding the RA). How are you doing?

[Shalf in reply to Deniseelk]

Hi, your situation very similar to mine. I agree re the hydroxy not seemingly having much effect on RA. I was also on that from day 1 ( 200mg) along with methotrexate that I couldn't tolerate. Have had concerns re eye problems and now off it. Now on Baracitinib only.

Suzie x

[Shalf]

Hi Beth,

I was on benepali with hydroxychloroquine. It didn't control the inflammation for me unfortunately.

Hope your doing ok

Suzie x

[Beth72 in reply to Shalf]

I’m on benepali and methotrexate and methotrexate doesn’t agree with me I was wondering if I could just take benepali on it’s own without methotrexate and my painkillers

[Shalf in reply to Beth72]

Morning Beth

That question would be be best put to your Rheumy. We can all share our own experiences on here but as individuals different drugs work or don't work for each of us.

I didn't do well on methotrexate and I was taken off it.

Best wishes

Suzie x

[Brikel]

Hi Beth

I’m on Benepali and Sulfasalazine.

I’ve been on Sulfasalazine for about 3 years started Benepali 18 months ago

Best decision ever as I’m now in clinical remission I am going to reduce the Sulfasalazine in half down to 1500 mg daily and hope the results continue

[Beth72 in reply to Brikel]

I wonder if they will try me on Sulfazalazine methotrexate makes me ill and it has done nothing for me

[Thegreywitch]

Yes, I just use benapali. I used to take mxt but made me feel ill but it was great for the rheumatoid.

[VronMc]

I'm on just Benepali, which seems to be working quite well. I do take a number of other medications though, including painkillers.

[SnooW]

Hi, I am on Benepali only. My rhemy said it was up to me whether or not I wanted to add in some mtx, (she knew how ill it made me feel) and when I asked how much I would need to take she said as little as you wish, but it can help the Benepali work better in some cases. So I refused the mtx, and have now been on Benepali for just over 3 mths. I still get achy at times, and stiff joints most days, (worse in damp or hot weather!) but not had any true flare ups, and I rarely take any pain relief for it - maybe a dose of Paracetamol if it's really bugging me. But you really need to speak to your rheumy about coming of mtx as she is the one to advise you. Wishing you all the best!

[Beth72 in reply to SnooW]

Hi iv got a appointment 13 th aug I will ask if I can get off mtx as it making me ill thanks

[SnooW]

Keep us posted!