New medication. And denied for treatment?!?!

[Ccrowlu]

I wanted to update on my new medication because it’s worked wonders for me. I’ve only been taking it for four days and I’ve never felt better in my entire life. I have my energy back and I’m in absolutely no pain (except for the occasional “you sat in that position too long” stiff pain which now quickly goes away. I’m also sleeping better and getting out and about more. Though on the downside my body is weak and I’m constantly nauseous but i looked it up and found out these are normal symptoms that can go away over time.

Now to the denied treatment. We had to ask our insurance for my pain rehabilitation treatment and my mom got an email from the rehab center saying we were denied. And it costs 12,000 dollars to pay for it outpatient so I don’t even want to know how much it costs for inpatient treatment. So now I may not get to go and will probably have to look at other options.

[Allije]

Can I ask what the new treatment is please? Maybe I missed an earlier post. Thanks

[Ccrowlu in reply to Allije]

It was supposed to be a pain rehab center that I would’ve gone to for three weeks. Basically really intensive physical therapy and mental therapy to get me back into a pattern of life.

[AgedCrone]

As far as I know we very rarely get inpatient rehab in UK, & we mostly get through.......so there must be remedies that your insurance company will cover. I have friends in the US with RA & they have never had inpatient stays, & they are doing well....one on Mtx, the other on Rituxan...but I think there is a co-pay on both of those.

Why don't you ask your Mom to speak to the insco & see what they will cover, & at the same time you talk with your prescribing rheumy team & see what they suggest.

It's a slow old process Ccrowlu getting a treatment that works for you but doesn't make you feel worse with nausea etc., but hang on in there...you say you are having less pain,& sleeping well so things are moving in the right direction for you...hope that continues.

But you & your Mom have to nag away to get you the right meds.

Good Luck!

[Ccrowlu in reply to AgedCrone]

We found out I don’t have RA but instead have hypermobility in December when we went to a rheumatologist. And the pain rehab was just to get my muscles stronger and get me back into school so I can start living a normal life again. Plus my mom already called to see what is covered and they have yet to email her the list they said they would

[AgedCrone]

Well that's good isn't ? I bet you leaped for joy when you found you did not have RA?

With the right exercises hyper mobility can be managed. You might have got quicker results at the rehab but ask your doctors if they can recommend a gym or somewhere not too expensive that you can afford where they have qualified instructors to help you get muscle strength & tone. You might only need to go a few times, but if you are taught the right movements from now on you you could maybe go once a month to check that you are improving.....but like all physical exercises use you only get results if you stick with it. Boring but true!

Sounds like all your hard work getting to see the right doctors is paying off Ccrowlu.....well done for persevering. Summer is coming in, maybe you can find some outdoor exercise classes where you will meet people who also have hyper mobility. It's always good to have someone who really understands your problem, which is why this RA site us so good.

We'll all look forward to hearing of your progress.

[Ccrowlu in reply to AgedCrone]

Lol I hate being outside. I have a very fair complexion and burn within minutes if I’m not really coated up with sunscreen. And I did leap for joy because now there is a better chance for me to get back into life. Though even months later it’s still weird saying I have hypermobility instead of arthritis after the two years of saying I did.