How long does it take?

Hi, last year April I was told I needed a kidney transplant, I have completed my tests and joined he list in November at the same time my mother in law began being tested to see if she could donate, she has had all her tests and has passed them all, we have been waiting 6 weeks for the last test result. (It was ment to be 4 weeks) I am based in Manchester and she she in Kent but goes to Guys in London, all her tests have been done there. She turns up for an appointment at guys, her nurse hasn't chased her results they don't always know or why she has arrived.....it just seems a mess, my nurses\docs are great but she is having such a bad experience trying to donate. Are Guys dragging their feet because I'm not their patient and op is being done in Manchester?

she hasn't even been referred to my surgeon\hosptial. Is the normal? I would really like to hear from people who have been through this

Thanks

Gee x

2 Replies

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  • Hi Gee

    My husband had a transplant 2 years ago, his mother donated a kidney. I totally empathise with how you are feeling, for us the wait at times felt endless and so difficult to understand. We also had the issue of living in different parts of the country. You will get there, I promise, try and keep steady. If you have the energy - or have a friend or family member who can do it for you - I would keep in regular contact with the Living Donor Team (I was ringing them every few days, just to keep in the loop). It is a huge emotional journey but when I look at my husband now, and see him back at work, playing with our kids, I am so grateful. And the stress of the waiting period has faded.

    I wish you all the very best and to your mother-in-law. It's really positive that all the tests are done and hopefully you are nearly there!

  • Hi Alison for your reply, it comforting to hear that I'm not along, I see my consultant tomorrow so hopefully we will have some good news.

    Thanks again

    Gee

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