A Star on the Rise: Journey of a Pret... - Parents of Childr...

Parents of Children with Kidney Disease

1,028 members226 posts

A Star on the Rise: Journey of a Preteen with Branchio-Oto-Renal Syndrome

JackieJ_NKF profile image
JackieJ_NKFPartner
0 Replies

Dancer, model, and actress–Lily Repace is not your average preteen. She was born with a genetic disorder that caused inner ear and kidney malformations. But Lily never let the diagnosis get her down. She embraced it. Today, Lily is living her best life as she follows her dreams. Learn more about Lily's story: kidney.org/news-stories/sta...

Written by
JackieJ_NKF profile image
JackieJ_NKF
Partner
To view profiles and participate in discussions please or .

Not what you're looking for?

You may also like...

What’s the impact been on the rest of your family?

Today we'd like to hear how kidney disease has impacted the rest of your family. Has there been an...
Vesa profile image

What has your experience with the healthcare system been like?

Happy Halloween to you all! Today, our question is about how you and your child have experienced...
Vesa profile image

New to the group!

Hi there, very excited to be a part of this group. My son was diagnosed with Dents Disease which is...
Samhan profile image

Chronic Kidney Disease

Hello everyone, my son was born with a blockage called Posterior Urethral Valves. He had surgery at...
RachaelMae profile image

Other diagnoses

Do your kids have learning disabilities or other mental health diagnoses? My daughter has ADHD and...
mbhnyc profile image
NKF Ambassador

Moderation team

See all
JessicaJ_NKF profile image
JessicaJ_NKFAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.