Dancer, model, and actress–Lily Repace is not your average preteen. She was born with a genetic disorder that caused inner ear and kidney malformations. But Lily never let the diagnosis get her down. She embraced it. Today, Lily is living her best life as she follows her dreams. Learn more about Lily's story: kidney.org/news-stories/sta...
A Star on the Rise: Journey of a Pret... - Parents of Childr...
A Star on the Rise: Journey of a Preteen with Branchio-Oto-Renal Syndrome

JackieJ_NKFPartner

Written by

JackieJ_NKF
Partner
To view profiles and participate in discussions please or .
Not what you're looking for?
You may also like...
What’s the impact been on the rest of your family?
Today we'd like to hear how kidney disease has impacted the rest of your family.
Has there been an...
Chronic kidney disease
My daughter is 10 years old and has stage 2. She had a urinary tract infection since she was 4...