Mom with 11 yr old son that had Kidne... - Parents of Childr...

Parents of Children with Kidney Disease

988 members222 posts

Mom with 11 yr old son that had Kidney Transplant at 18 months old.

Tulip00 profile image
2 Replies

Hello, I’m new to this community so grateful to have found this. Wish it was around 10 yrs ago when we were dealing with my sons transplant…

Just looking for parents with children that may have gone through a transplant. My son is 11 now and just going through a huge change physically, emotionally, low self esteem around other kids, he struggled during Covid being home doing online schooling and being very secluded from people, we were very nervous about him getting sick. But now he’s back in school, he has gained weight and that dosnt help his self esteem. Looking for suggestions, we’ve tried many things. Also being on this steroid I know can make children gain weight or have emotion breakouts. Is it his age? Etc

Thanks for any support 😊

Written by
Tulip00 profile image
Tulip00
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Cap21_NKF profile image
Cap21_NKFPartner

I recommend contacting the doctors at his transplant center or general practitioner. They will know if the steroid is best for you based on his new kidney and medical history.

BearMama0321 profile image
BearMama0321

Hi! I can’t offer advice since we are earlier in our journey. My son is 2.5 and stage 3 CKD. Just wanted to send support; from what I hear, 11 is a tough age, period. More so with steroids and related weight gain and self esteem issues.

Agree with reaching out to his transplant team for insight and support. And a dietician may be able to help him manage the carb-heavy cravings from the steroids. It’s absolutely a legit side effect, as is moodiness/emotional swings… on top of typical puberty swings. Poor kiddo!

You’ll get through this and so will he; it’s incredible what he’s overcome already! Good luck.

Not what you're looking for?

You may also like...

Play ideas for a 5 year old 6 months after transplant

It has been 6 months now since my son had his kidney transplant. My son really wants to go and have...

Chronic Kidney Disease

Hello everyone, my son was born with a blockage called Posterior Urethral Valves. He had surgery at...

New to the group!

Hi there, very excited to be a part of this group. My son was diagnosed with Dents Disease which is...

Suprapubic Catheter

Has anyone had experience with a Suprapubic Catheter? My 2yr old son is scheduled for the surgery...

15 and Stage 4 CKD

Hi! My name's Meghan. I found out I had stage 4 CKD 2ish years ago after going to the Er with a bad...