Pd/ng experiences

[Mom_of_k]

Hey parents, How fast did your child start growing once on pd? We start tonight for the first but now his dr wants to put in a ng tube due to him not being on track with growth. How’s everyone else’s experience with pd or ng tube??

[MotherofBarbearians]

My 9month old just had an NG tube inserted. We were in patient until he had gained 200 grams. He has gained weekly since then and within a week he was noticeable fuller and happier. I was also given the recommendation to add iodized table salt to his milkies daily ( specific dose). The renal nutritionist said it helps them grow. My boy had PUV Dx at birth with hydronephrosis of both kidneys. He has terrible grade 5 reflux so we catheter him intermittently. All this was started around the same time and I think everything has helped him grow.

[MotherofBarbearians in reply to MotherofBarbearians]

Also, my son had no appetite so this helps take the pressure and stress out of eating and saving my sanity. I know he is getting the nutrition he needs. All his meds now go in the tube so I don’t have to annoy him with medications orally either. He has a little pump and I just pour the left overs after each feeding in the bag and he plays while he passively feeds. It’s fantastic.

[Mom_of_k in reply to MotherofBarbearians]

Congrats on your son growing! We ended up not getting the ng instead we are adding calories like crazy to his ensure drinks so for now the drs are satisfied