What resources do you find to be help... - Parents of Childr...

Parents of Children with Kidney Disease

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What resources do you find to be helpful for you and/or your child (websites, apps, etc?)

KelliC_NKF profile image
3 Replies

When resources do you find to be helpful for you and/or your child (websites, apps, etc?)

Also, what resources do you wish had been made available to you?

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KelliC_NKF profile image
KelliC_NKF
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AHP2018 profile image
AHP2018NKF Ambassador

We use a great app called BP Monitor when I take my daughter's blood pressure. I enter the values and it stores the values and then I can email it directly to her nurse.

My daughter is in 7th grade, so we are just on the cusp of her taking on more ownership. We gave her an apple watch a few years ago so she can set multiple alarms each day (for medications, as well as for reminders to drink water) and she texts me from it every morning at school (as well as at sleepovers, etc.) to tell me that she took her medications. It is a great way to communicate and I can feel more comfortable giving her more space to manage her own health. They are expensive but I have found it to be very worth it for her medical situation. A phone can do the same thing and would probably be less costly.

Does anyone use a good medication management app that reminds when to take medications, and possibly reminds when to order new ones? Right now I store everything in my head but I want my daughter to start taking ownership of that as well.

Outnumbered8908 profile image
Outnumbered8908 in reply to AHP2018

Medisafe is a great app for medication reminders.

JMRC profile image
JMRC in reply to AHP2018

I was also looking for a medication reminder for my son, 15 years old. I had it on my phone but he really needs to be the one. We just set the alarm in his iPhone. 3 days in and seems to work.

Apple Watch sounds good too. Have to check that out

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