mycophenolic acid: what dose are people... - Kidney Transplant

Kidney Transplant

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mycophenolic acid

Parkerbarker profile image
14 Replies

what dose are people on 4 months out

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Parkerbarker
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14 Replies
Seanthesheep profile image
Seanthesheep

750 mg twice daily. It has not changed in two years. Hope you are well. Cheers Sean

Sailor78edward profile image
Sailor78edward

i was 1000 mg twice daily for the first six months then 750mg twice daily since. I’m approaching two years now.

DexterLab profile image
DexterLab

I started with 750 my twice a day, and at about 6 months shifted to 500 mg twice a day. Have stayed there for over 3 years.

blackkat2 profile image
blackkat2

360mg twice per day, same for 4+ years.

Eyak1971 profile image
Eyak1971

my dosage got cut in half after I had bad side effects. It took an emergency doctor to make me aware of the problem. My kidney doctor failed to do the testing and only went by the normal prescribed dosage. So my suggestion be your own advocate. I trusted my doctor but he did make a mistake in this case.

Parkerbarker profile image
Parkerbarker in reply toEyak1971

yes exactly i am having side effects terribly at the 720 mg twice a day and my kidney dr doesnt test either pisses me off he wasnt monitoring tacrolimus properly and almost killed my kidney and i have to fight to get that reduce

Eyak1971 profile image
Eyak1971 in reply toParkerbarker

hope the tide changes for you. A second opinion is always a wise choice as well as being honest with doctor.

WYOAnne profile image
WYOAnneNKF Ambassador

I am 23 years post transplant and continue to take 360 mg twice daily

Blue-Quilter profile image
Blue-Quilter

I was on 360 mg twice daily until about 2 months after my transplant. Routine labs showed I had virtually no white blood cells (neutrophils) so they "paused" it. I got two shots to stimulate WBC production and get back in the detectable range. They never did start it back again and I just hit my 3 year mark. Both my brothers are on 360mg 2x daily, one at 5 years, the other at 3 months. That said, everyone is different. Best wishes.

LangstonChews profile image
LangstonChews in reply toBlue-Quilter

You have two other siblings with Kidney issues? So do I. Three out of the six children in my family have Kidney failure and have been transplant or are on dialysis and my father was a transplant recipient as well.

Blue-Quilter profile image
Blue-Quilter in reply toLangstonChews

Six of the seven siblings have FSGS; the one who dodged it had ovarian cancer and passed away last month. Two still have GFR's above 40, while our oldest sister is right at 20 and facing a transplant. Our mom had "a renal insufficiency" for many years, but never was biopsied to nail down the exact problem. Our histories tell the story anyway!

Palmtreeguy profile image
Palmtreeguy

It varies a lot from Team to Team. I started with Tacrolimus, Cellcept and prednisone. By the 6th month, I was only on Tacro ( 2 in the AM, 1 in the PM). now, at 9 months, this is all the immune suppressant that I take.

DeeDee549 profile image
DeeDee549

I have been on 250 mg 3xday for almost 17yrs. Will have my transplant for 17 yrs on Dec 5th!

peregrin profile image
peregrin

Almost three years after transplant, 180 mg twice a day

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