mycophenolic acid

[Parkerbarker]

what dose are people on 4 months out

[Seanthesheep]

750 mg twice daily. It has not changed in two years. Hope you are well. Cheers Sean

[Sailor78edward]

i was 1000 mg twice daily for the first six months then 750mg twice daily since. I’m approaching two years now.

[DexterLab]

I started with 750 my twice a day, and at about 6 months shifted to 500 mg twice a day. Have stayed there for over 3 years.

[blackkat2]

360mg twice per day, same for 4+ years.

[Eyak1971]

my dosage got cut in half after I had bad side effects. It took an emergency doctor to make me aware of the problem. My kidney doctor failed to do the testing and only went by the normal prescribed dosage. So my suggestion be your own advocate. I trusted my doctor but he did make a mistake in this case.

[Parkerbarker in reply to Eyak1971]

yes exactly i am having side effects terribly at the 720 mg twice a day and my kidney dr doesnt test either pisses me off he wasnt monitoring tacrolimus properly and almost killed my kidney and i have to fight to get that reduce

[Eyak1971 in reply to Parkerbarker]

hope the tide changes for you. A second opinion is always a wise choice as well as being honest with doctor.

[WYOAnne NKF Ambassador]

I am 23 years post transplant and continue to take 360 mg twice daily

[Blue-Quilter]

I was on 360 mg twice daily until about 2 months after my transplant. Routine labs showed I had virtually no white blood cells (neutrophils) so they "paused" it. I got two shots to stimulate WBC production and get back in the detectable range. They never did start it back again and I just hit my 3 year mark. Both my brothers are on 360mg 2x daily, one at 5 years, the other at 3 months. That said, everyone is different. Best wishes.

[LangstonChews in reply to Blue-Quilter]

You have two other siblings with Kidney issues? So do I. Three out of the six children in my family have Kidney failure and have been transplant or are on dialysis and my father was a transplant recipient as well.

[Blue-Quilter in reply to LangstonChews]

Six of the seven siblings have FSGS; the one who dodged it had ovarian cancer and passed away last month. Two still have GFR's above 40, while our oldest sister is right at 20 and facing a transplant. Our mom had "a renal insufficiency" for many years, but never was biopsied to nail down the exact problem. Our histories tell the story anyway!

[Palmtreeguy]

It varies a lot from Team to Team. I started with Tacrolimus, Cellcept and prednisone. By the 6th month, I was only on Tacro ( 2 in the AM, 1 in the PM). now, at 9 months, this is all the immune suppressant that I take.

[DeeDee549]

I have been on 250 mg 3xday for almost 17yrs. Will have my transplant for 17 yrs on Dec 5th!

[peregrin]

Almost three years after transplant, 180 mg twice a day