Guillian Barre Syndrome : Anyone have Guillian... - Neuro Support

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Guillian Barre Syndrome

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Prib
5 Replies

Anyone have Guillian Barre Syndrome?

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Prib
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5 Replies
Hobbledehoy profile image
Hobbledehoy

18 days and no-one has answered you, not even - especially not - admin! I am new to this site and very disappointed, it seems moribund. Is no-one running it, is it still live?

I'm no help, I'm afraid - my only "experience" comes from a v elderly friend, who suffered from it many years ago. I only know that it is a very uncommon, serious viral disease whose cause is still unknown.

Good 🍀 and God bless.

Prib profile image
Prib in reply toHobbledehoy

Thank you sooo much for responding ❤️❤️🙏🏻

neon500 profile image
neon500 in reply toHobbledehoy

You are right that is uncommon but it's not viral. Its autoimmune and fascinating.

neon500 profile image
neon500

yes. I had it 5 years ago. IViG and a drug trial. back at work in 2 months. Now have a number of chronic issues that may or may not be related.

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Prib in reply toneon500

I have had it for 8 months and still paralyzed

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