I don't know enough about it

[BBpuds18]

Hi I'm new on here, I have chiari malformation & would like to meet others who know anything about it

[SD-Zulu]

I might have it. I have Syringomyelia, do you have this too? I’m waiting for more scans and test results.

[fortheboy]

My son has chiari and just had his second surgery. It looks like we are the "pros" here. His first surgery was when he was 5 years old and it was the best decision we every made. Due to his young age, growth presented issues that necessitated a second surgery. It was been 2 weeks since surgery and he is progressing well.

[Keenbean]

Hi,

I have chiari malformation type 1. I suffered from headaches for nearly 10 years and had a CT scan of the brain and two MRI's. The second MRI confirmed that I have a tonsillar herniation of just under 7mm on the left side. But no syrinx. Have had various painkillers and prophylaxis drugs. The headaches have gone into remission but they do come about sometimes. Have pressure in head when I bend down though all the time and also when I cough.

I have been advised not to go for surgery as it is a major surgery. The surgeon said to wait and watch for now.

Regards