Sending a Thank You to...You all

[jackiesj]

We are first responders on a blog, this blog...I am grateful that you all are here, the tech and being able to access it so i can hear live people, you my friends and family.Thank you all.

[jimeka]

Hello Jackie, lovely to hear from you, are you ok? Blessings Jimeka 🤗

[twooldcrows]

i agree we are each others savors for to many don't talk to their doctors enough so talking on here really helps many that don't have anyone close to talk to or friends but on here there are lots of them on this pages ....thank you also for all of us have helped each other for one reason or another or just for listening when someone needs to vent or cry about having to live with this disease or just life in general....so happy for you to say this for all need this ...love and much happiness...whether it is just to laugh at a joke or thinking of something in the past that someone talks about that brings up some wonderful loving memories for all of our family and friends that we have lost ...just keep on going and enjoying life...

[BlanketTime1 in reply to twooldcrows]

for the OP, it took me a second to get what you were saying, but you're right. twooldcrows a lot of times our doctors don't listen😡 and even when they do, it's not the same as having a community of people who understand. this site has helped me a lot. a couple weeks ago, i posted about my mental state during my most recent relapse. every time before this, i've gotten suicidal, but this relapse (which brought two new symptoms instead of the usual one), i've kept right on smiling. it's this group of wonderful people that made the difference.🤗❤️

[jackiesj in reply to BlanketTime1]

I love that name you have!

[BlanketTime1 in reply to jackiesj]

thx! i spend much of my time either sleeping or wishing i was sleeping, lol. i don't know if anyone else can relate, but i've had trouble sleeping since i was 5. i remember lying in bed awake, wondering if i'd ever get to sleep. there were quite a few days i went off to school with zero sleep.

and i do love my fluffy blankets.😀

[jackiesj in reply to BlanketTime1]

Do you know if this is genetic? I have cousins(more than one)...if i can go my schedule i do better physically but...i work in darkness like a vamp.I avoid much yet, i get use to that ......I do take benedryl(check with doc) to help sleep.Even a sleep med rarely lets me sleep 8 hrs. pain, a sad byproduct is less comfort sleep.

[BlanketTime1 in reply to jackiesj]

belsomra saved me. i've taken nearly every conceivable remedy for insomnia. melatonin? i was taking 10 times the dosage alongside 10 times the amount of benadryl recommended... and was wide awake. my dr's eyes got big when i mentioned it and she said, 'that's a joke, right? you are joking, right?' nope. btw DON'T DO THIS!🥺

some of the meds worked, but with odd side effects. this one drug that worked as well as belsomra for me also made me walk around after i was unconscious. on another thread i mentioned how one night i went to sleep, got up, went to a different level of the house, cooked bacon & eggs, put it down the disposal, washed the dishes and went to bed. the only reason i know is my dad watched me do it. i also kept waking up fully clothed in the shower after falling and hitting my head.

yeah, that had to go. if you are able to get it, belsomra is an idea. i do take the maximum dosage, but i only have insomnia now right before my period. the rest of the time, i sleep. it's not on a schedule, but i sleep at least 8 hours every day! it's wonderful.

neither of my parents suffered from insomnia, nor my siblings, so i don't know where it came from.

[twooldcrows]

💑😀😆👻🧡💛💚💙🌟🌧️🌧️❄️❄️❄️☃️☃️☃️☃️

[Kenu]

Have a great day and nice to see you back posting 👍🙏😉🤗☺️ Ken 🐾🐾

[carolek572 CommunityAmbassador]

So lovely to hear from you, jackiesj ! Keep Smiling!

[JSSimp]

I agree Jackie with the site been a blessing daily🙏🏾

[twooldcrows]

thank you all for a great and wonderful day for we are all here to see to that we all can have a great day for we help each other to accomplish that and will feel so good for all of the good we do for each other .......love and much happiness...laugh and giggle lots to laugh at self and that MS is not to win ....

[rjoneslaw]

I agree 100%