Good morning my ms family, actually what overtime of day it is for “YOU”, G’day and I hope things are going well for “YOU”.
Let us get to it. I owe the family an APOLOGY. It does appear that yesterdays post caused some mis interpretation. That was entirely my fault and I most humbly apologize. Relapsing-Remitting ms (RRms) CAN be bad, rather unpleasant. It is different for each of us. Look at the size and variability of where it can attack. The entire central nervous system (CNS). this a lot of nerves and it can attack anywhere at anytime and multiple times. So basically my RRms may be painless yours may be not. It is very painful but I will not go into that. Writing primarily to the new diagnosed (newbies) I will NOT tell “YOU” of what differ unties may lay ahead of “YOU”. This is a very BIG disease. What difficulties I have, “YOU” may not. Do “YOU” understand that. It is true, no two persons RRms is exactly alike. It may not be as bad as people say or what “YOU” first learn. Do not fear the possibilities, they may or may NOT happen to “YOU”. Have a little influence on your disease. Take your DiseaseModifying Therapy (DMT) and slow it a little. “YOU” are doing this to give yourself more time to adjust. DMT will NOT cure “YOU”. It is slowing the progression a little. Giving your body TIME.
Do NOT assume that your RRms will be like others all the time. Learn from them as to how they adapted and solved their problems. Adapt them and make them your own. I feel there is no need to concentrate on the blackness and fear in your RRms journey. Look towards the light. We are in the gloom now, let us do our best to move towards the light. We may never get there, the light being a total cure, but at least we are not in total darkness of fear and hopelessness.
I will always try my best to give “YOU” hope and the belief that this illness has not crushed “YOU”. If it progresses which it may, you will believe in yourself, that with effort “YOU” can gradually overcome it. When “YOU” lay your head to sleep and the gremlins of Trigeminal Neuralgia come knocking and treating your head as a pin cushion and keep stabbing “YOU” night after night. That when your bladder or bowel collapse in public that “YOU” are emotionally strong enough to accept it. To shrug your shoulders and walk away from the situation. Yes, eventually cry, but do it in private. Be strong in public. Do not let your traitorous RRms body show weakness. Be strong within yourself.
RRms may be bad but it does NOT always have to be. It WILL have its moments but if “YOU” are sensible and strong, “YOU” might be able to overcome them. Believe that “YOU” CAN believe that “YOU” are better.
Royce (your brother and ms writer)
Sorry for the misinterpretation, entirely my fault
