Sound Familiar?

[Jesmcd2]

I know I have heard some of these a time or two. What about you?

The best one I was told was the cured one!😂🤣 Have to say I was floored! I just looked at him, considered the source, (cab driver) and said. Oh yeah? 😁😂🤣

Share your story! 🤗💕🦈

[falalalala]

I haven't heard any of those but have been asked if I am one of Jerry's Kids.

Over the years, I have heard about many miracle cures that people have heard about.

I understand that they might be trying to help but I usually just take that info with a grain of salt.

[Kenu in reply to falalalala]

Had lots of people and friends say “Jerry’, Kids”👍😝😁🎉🙃 Ken 🐾🐾

[falalalala in reply to Kenu]

I'm in good company then!

[Morllyn in reply to falalalala]

My husband and son have a form of muscular dystrophy. They are/were Jerry’s kids. Years after my son had left home my husband got a letter from the Muscular Dystrophy association asking if he, my husband, wanted to go to their Summer Camp! He had fun calling and asking if they really wanted a 50 something year old man to come to camp. They laughed and said that they obviously had made a mistake but if he wanted to they would let him. He didn’t but he had fun talking with them.

And yes, I have had people confuse MS with muscular dystrophy. They have stared at my legs, looking for the braces I guess.😆

They meant well.🤗

[falalalala in reply to Morllyn]

Who knows? Camp might have been a blast!

I've had people tell me that I'm going to get my legs amputated when they've learned I'm diabetic.

I can't expect people to know about any medical issue I have or don't have.

I'd just like them to STFU

[Morllyn in reply to falalalala]

I understand!

And I told my husband that he should have gone, the kids would have loved him.

[falalalala in reply to Morllyn]

[jimeka]

The worst I have had said is “ I had a friend who had that and she died” yes right? 👎

[agapepilgrim in reply to jimeka]

One extreme to the other!

[Morllyn in reply to jimeka]

😬😮 Gee thanks, how uplifting!😂

[CV97 in reply to jimeka]

Yep, I told the dog trainer (after a couple months of training, before our final session) that "run" was no longer in my vocabulary because of MS. He responded by letting me know he understood because his best friend's mother had passed away from it.

Gee, thanks, that's JUST what I wanted to hear...

He was trying to empathize, but still. 😐

[twooldcrows]

says it all and so true...thank you...

[agapepilgrim]

A person who I thought was a “good friend” was first told by my husband I was just diagnosed with MS and her reply? I work with a woman with MS and she does fine; tell her not to worry a bit.”👹👹👹 Guess I forgot to tell her about my cousin who died of MS when she was 56, in nursing home last 5-6 years.👹👹👹

[agapepilgrim]

When I used to go out, why do people always say, “you look sooo great!” instead of asking, “how are you feeling?”👹👹

[jorrell]

Amen to your post. My favorite is when many of the people I run into tell me, after they searched MS and pot online and it was a cure for MS! And tell me they read that one person tried it and it worked! My response was simple... I'm allergic to pot.... So much for the positive of being open about having MS!

[ahrogers in reply to jorrell]

People think it is a cure all. I am an oncology nurse and have lots of patients who had smoked it for years before getting cancer so it didn't prevent or cure theirs.

[Morllyn]

But you look perfectly fine to me!😳 After I had said that I was fatigued and couldn’t do something.

That is what I heard for so many years.

I hated to hear that!😖

Sorry, I am glad that they thought that I looked fine but looks are often deceiving.

[jimeka in reply to Morllyn]

When you say that you get so tired, they turn around and say I get tired too, and if you say your legs hurt, they say that it could be a sign of age. Are they being polite or they just don’t know what to say? 🤔

[ahrogers in reply to jimeka]

I recently had an opportunity to get my husband to understand what my fatigue can be like. I was getting ready for work a couple weeks ago and put my shirt on backwards. My fatigue was worse than usual that day and because the energy it would take to turn the shirt around seemed almost insurmountable I thought to myself if it would be ok to just wear it backwards. I ended up turning it around while thinking about how much coffee I was going to need to drink to get through the day.

He really seemed to get a better grasp after I told him.

He has learned not to complain to me about his aches and pains as he knows I deal with a lot of symptoms and rarely comment on them.

[Humbrd in reply to jimeka]

I hear that too. When I tell my boyfriend I am really exhausted today I need to rest, I don't want to go out, he'll say something like but you're doing laundry today. I try to explain it's not as hard to just put it in the washer and then just put it in the dryer and rest in between. Sometimes I'll say I'm really tired today. And either he or my sister will say me too and then talk about how tired they are. I understand they get tired. Just give me a little bit of empathy. Honestly, I just don't think they try to educate themselves to know what I'm going through. And people close to me don't talk about MS, like if they say the words then it's real.

[rjoneslaw]

I had not heard that b4 but again no one knows whats going on with me.

Asked what happened I injured myself

[GeorgeSimons]

MS is different from person to person. I know a “young” lady’s who has MS and you’d never know it. Me my speech gets slurred when l’m tired, left arm and leg doesn’t work too well. MS in and of itself isn’t fatal it’s the side effects. Drugs nowadays are getting better just wish they’d find a cure. Being depressed is something they say we are automatically, but it up to you how you deal with it. I look at it as l’m not dead, beating your parents to that sucks, so l’m good to go. Yeah life can suck but it could be worse.

[Smithnova]

Love it! Heard them all. I love everyone trying to cure me all the time. I know people are trying to help, to relate, but this is something unless you been there, relating to it is not possible. Pretty much the same with any diagnosis. Our bodies are all different, our DNA is truly one of a kind; so not that unusual we all react differently. Best key to handling the ignorance of the want to be doctors, I can relate people; smile, laugh, say ok.... Then find a group/friends like this one, one that truly makes you comfortable, truly provides laughs and support.

[CrazyCatWom]

I saw a great T-Shirt from MS Awareness that I want to get: "I on't look sick? You don't look stupid! ILooks can be decevieving!"

[Peruzzot in reply to CrazyCatWom]

😂🤣😂🤣😂

[Hidden in reply to CrazyCatWom]

AWESOME

[Peruzzot]

I've herd them all. I've also been asked about being one of Jerry's kids. As for cures...one idiot told me to get stung by honey bees and I'd be instantly cured. I told home that as many times as I've been stung by honey bees I should have been immune to MS!

[Hidden]

I would have said...”you first”

[hairbrain4]

I have been so blessed with friends. Not one of them have said anything that might be offensive. They ask me how I am doing, they ask questions about what MS does. I have some that have/had a family member with MS & they ask me "My cousin had problems with-----does it happen to you? But I have had people that don't know me very well say all of those things. Just tonight at my Bible study I was trying to say something but couldn't get the words out cuz they wouldn't come to my mind. I said "It makes me so mad sometimes cuz I can't remember the names of things." One of the ladies there that is 17 years older than me (82) said "Oh honey get used to it, it just gets worse as you go." I said "Great now I'm going to get double dipped, MS & old age!" The poor lady felt bad and said "Oh I'm sorry I forgot you had MS, see what I mean?" With some people you just have to laugh with them.