Diagnosis

[Jazymay]

Hi,

Can you tell me if you were diagnosed with FND or told there was nothing wrong, with negative MRI before later being diagnosed with MS?

Thanks,

Jazzymay

[greaterexp]

I think you’ll find lots of folks here were initially misdiagnosed or that it took a long time to get a diagnosis. With my CIS over 20 years ago, my neurologist shrugged his shoulders and couldn’t explain it. I was diagnosed about 3 years ago with MS.

[Jazymay in reply to greaterexp]

Thanks for your reply. I really don't know what to think. I am very tired atm. My walking is gradually getting worse and starting to cause stiffness in my legs. I am using cruthes most of the time out of the house. My hands are losing fine motor movements (new). Woke up this morning and my back is stiff from the base of my skull all the way down to my coccyx and hips. Over 10 years I have had 3 negative brain mri and 1 negative spine MRI when my legs went crazy jerky and I couldn't walk ( latest one, but didn't do brain coz it had been done a year ago). So diagnosed with functional neurological disorder. Which means you are anxious and it will go away in a couple of weeks, or when you stop being stressed. That was October 2018.

[IFwczs in reply to Jazymay]

Did you get a second opinion?

[Jazymay in reply to IFwczs]

No. I don't know how to.

[IFwczs in reply to Jazymay]

Find another doctor on the Internet. If your insurance pays, don't tell him you already have an opinion.

[bxrmom in reply to Jazymay]

Have you had any other testing besides MRI? Evoked potentials, blood work, spinal tap? With and without the contrast of spine & brain MRI? I was sent to a neurologist after my MRI showed signs of MS. My neuro sent me for other testing and the spinal tap was what gave the final dx.

Jessie

[Jazymay in reply to bxrmom]

No. Nothing else. They just aren't interested.

[bxrmom in reply to Jazymay]

Would definitely look for a second opinion.

[VStargazer]

I have been diagnosed and undiagnosed and rediagnosed and on an on and on. Finding a doctor is not as hard as finding a good doctor. There are claims of a good doctor in my near locale, but I haven't found one. I use what vitamins and other supplements I can and use low steroid creams OTC. and try not to be unhealthy. Pain, fatigue and depression is easier handled with my belief system in God. Still it is a hard burden. There is someone else in many places that has it worse, and even more unbearable. So I am thankful.

[Jazymay in reply to VStargazer]

A sympathetic doctor would be a bloody good start, whatever is going on with me!

[Jazzihorsecat]

Jazymay, I was mis/&under dx'd for over 11 yrs. Got sent to a psychiatrist cuz said I was depressed cuz I was in pains, well any white-coat dude$ are a big joke!👎😕 & being a Harm-U-Psuetical guinea pig & human pin cushion aint wrking!💊💉So, I got Ann Boroch's E'book "The Candida Cure", & " Healing Multiple Sclerosis", these 2 books have changed many 1,000's of people's lives (women & men), for the (Reverse of any disease) much better!👍😍😀

I have been on this awesome leaky-gut cleanse & diet & healing. For 7 months now & I am more regular, more stable, no more pains, Whenever our guts are clogged our whole body's system gets outa wack, & it causes a plethora of weirdo diseases! Get that gut cleansed & healed up, we're on the road to reversal recovery my dear friend! Many Blessings💐& welcome to the family!💗💐👍😀 Jazzy🌹💜

[Jazymay in reply to Jazzihorsecat]

Yes. I have read about the gut bacteria referring to other, also unlikely things. So it doesn't surprise me. And, yes, I absolutely could make more effort. I guess I am a little self-pittying atm, pfhuf.

[VStargazer in reply to Jazzihorsecat]

Yes, I agree about the Candida. I noticed that when it is warm if Candida is dying off (and after giving in to more bread) it goes to southern places even in a few hours with stress sweat. I could not do vinegar drinks, my teeth felt a little chalky and I guess I was too gung ho, also choking and then I got a cavity! I do the Spring Valley variety with rice or rice powder in the capsules. It seems to be helping me so I am slowly taking maybe up to 3 day now. You should never do it straight. My mom (gone for 22 yrs) used to do cucumber slices with vinegar water and maybe just a tiny pinch of sugar. Sugar feeds candida though. I read on WebMd that vinegar fights fungus. You just have to go slow if you drink it in water.

[Jazymay in reply to VStargazer]

Thanks for your insight. That's is very useful.

[Kompany]

My first DX was transverse myelitis in 2001. I had never had any other symptoms but I did just lose the use of legs for no reason. It all started with my big right toe tingling & my leg feeling sunburned the touch & radiating heat. (No I wasn’t in the sun at all)

I ended up in the hospital and getting a spinal tap that that just gave hints of MS since was my first time exhibiting symptoms, there was no DX given. I was referred to a neurologist in Rochester, NY who agreed but gave it the name transverse myelitis. It was that way for 2 years when I had an episode of tremors then they decided to actually make my year of misery star worthy by putting the name I knew belonged to my disease. But my mom who was usually there for me wasn’t. I was DXd in September, she died in May.

I was put on antidepressants (Cymbalta & Wellbutrin) & Avonex because it was one shot once a week. I don’t do well with injections. But I also reacted poorly to the drug and took myself off because my follow up appointment was too far away. When that time came, she agreed, that drug’s side effects were too dangerous. I wasn’t put on other meds though.