Need info

[countrygirlcrazy2075]

I've been reading this thread forever it seems but haven't seen the debilitating leg and feet symptoms like mine yet. This is a two year thing so far with me and I'm losing the battle. Just diagnosed with spinal cord lesions by neurosurgeon. Set up for another MRI later. Accidental lung ct found the lesions. My feet and legs have gone from sciatic nerve pain to awful leg cramps to a horrible twisting of ankle bones and only at night. Feet are always swollen and discolored. Ruled out vascular. I have not slept two hours at a time in 2 years. History of back injury and four back surgeries from 2000. Did any of y'all have the leg and feet bone crushing muscle pain???

[Iona60]

I get spasticity, which feels like really bad muscle pain. Meds help somewhat.

[jimeka]

Do you think that your back surgeries could have caused it. I know that my back surgery is responsible for my leg numbnesss, swelling of the ankle and some discomfort. I hope that your neurologist can sort it for you. Blessings Jimeka 🦋 🍫

[countrygirlcrazy2075 in reply to jimeka]

I dont know. I've been through the test/treatment hell. Nothing has helped. Progressively worse. Like i said symptoms keep changing. The only way they found the lesions was a routine lung scan. Ms is in family. I really dont want to go there but the more i read the more i wonder. This pain in my ankles and legs is excruciating so i was really asking if anyone else has that

[jimeka in reply to countrygirlcrazy2075]

Have they offered you nerve blocks?

[countrygirlcrazy2075 in reply to jimeka]

Yes and injections and acupuncture and pills and physical therapy lol

[jimeka in reply to countrygirlcrazy2075]

You have certainly had the works.

[Jazzyinco]

Welcome to our wonderful, supportive family, we hope & Pray everything wrks out for U. Keep us posted. K. Have u tried All natura Hemp oil? Heard it really wrks w-pain.😃😻💕💜💛💚Blessings to U! ---Jazmine

[Maura37]

Hi I have serious foot pain numb during day and burning pain at night that goes up legs.Also have really bad nerve pain in my hands am only going through diagnosis my feet do change colour and also hands but more so feet can't really give great advice as I do not have firm diagnosis or any treatment yet i also dont sleep with the pain.but there is really lovely helpful people on this site and these last few weeks I think they keep me going.

Hope you find answers.

[Jesmcd2 CommunityAmbassador]

Hi and welcome countrygirlcrazy2075

I'm so glad your here, although the reason could be better, right? 😊

I'm glad your reading our posts, but sorry you couldn't find one that relates to you. 😕 So making a new one was brilliant.😊

MS affects EVERYONE differently! It has no rhyme or reason, nor does it care.

Are you seeing a MS specialist? If not get to one! You want a neurologist who knows MS. And can help you with your spasms..

As there are things/Rx that might help you. 😀

Let us know how it goes! 🤗💕

J🌠🦈

[Elizt3]

Have you considered massage? It’s been beneficial for my feet and leg pain.

[Fattius]

Most definitely! Feels as though my bones are being contorted with burning prickling around shins,feet,shoulders,jaw!

[bxrmom]

countrygirlcrazy2075 Glad, you are here but sorry you couldn't find a relatable post for what you are going through. I hope you get some good suggestions. Look forward to meeting you.

Jessie

[dogdaddy]

I experience horrible foot and leg pain every day since I was diagnosed in 2011. It's getting worse since I unable to walk now. Foot changing color to purple ( only right foot) and now right leg is going totally numb from my knee to my hip

[Jazzyinco in reply to dogdaddy]

Dogdaddy, have u ever been tested for diabetes2? Cuz those symptoms sound alot like it. I so sorry ur experiencing tht! Please keep us posted. 😍😻🙏💞Praying for u.Blessings---Jazmine & every1 else on here too.🙏🙏🙏😻💖💕💓💞💘

[dogdaddy in reply to Jazzyinco]

yes my blood sugar has been high since my last relapse and the resulting IV steroids. It hit the 300's when I receiving the steroids. I tested today and it was 167 and 166 and I took 3 units of insulin both times. I don't think that's it though...I've never experienced this type of numbness b4... only in my right leg and only from the knee to the hip area...I can't really explain except it feels weird when I touch it compared to my other leg....and today it spreading all the way down to my foot...ugh

[Lilith08]

As @Jesmcd2 said, seeing an MS practitioner could be helpful if you are not already doing so.

I haven’t had anything like you’ve described but I do have some fairly mild spasticity (now very well controlled with Baclofen) and can imagine that a really bad case of it could be part of your problem. I had no idea why my arms (though it seems much more prevalent in legs) ached and were always so tired.

If that’s what it is, physical therapy can help if it’s the right kind—from someone with experience in neurological issues. I learned, for example, that I have to do slow, gentle stretching. Quick (and that’s a relative term) and repetitive movement tends to trigger spasms.

Keep us posted!

[Bodega1939]

Your post made me cry. I do understand. I had something so similar occur from an L4 vertebrae that cracked in half when I tried to lift a 250 lb human. [Really stupid of me but it was reflexive as the 'human' was my husband.] I would wake up in the middle of the night hearing someone scream and it was me. My broken L4 was displaced and further damaged the ligaments and the ligaments tightened thereby contracting the L4 up and at an angle to the rest of the vertebrae. The local west central PA VAMC discounted my history and said it was just a back ache.

While visiting some people in Martinsburg WV , I had the same experience and went to their VAMC The ER doc there sent me to Bethesda, MD VAMC. They knew exactly what to do, they snipped that ligament and I have not had pain like that since. The vertebrae is still out of alignment, but the pain so diminished it hardly matters compared to every thing else going on.

I can only recommend that you search and find a really good neurovertebral back surgeon. I don't really know how they are classified.

I have continuous problems with my legs and feet, however. Part of that swelling is due to RA and part I have no idea.

Please find help and if you can't afford it, go to social welfare office and see if they can. Not everyone in the USA has enough money to care for themselves like you will have to be cared for.