CCSVI should be given to everyone wit... - My MSAA Community

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CCSVI should be given to everyone with MS

Lynnieheal profile image
7 Replies

Dr Zamboni won a GOLD award for CCSVI many are very proud of him Worldwide .

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Lynnieheal profile image
Lynnieheal
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7 Replies
postmanjim profile image
postmanjim

I agree with the NMSS (National MS Society). Don't waste your time or your money. Go to their website and do a search.

Frances_B profile image
Frances_B

What is this "prize" for and who awarded it?

After a randomised, albeit fairly small (about 130 PwMS), clinical trial of "treating CCSVI" in PwMS, Zamboni himself has now concluded that "treatment" of this "condition" is not reliable, consistent, or even appropriate for MS - to wit "The procedure cannot be recommended for treatment of patients with MS; no further double-blinded clinical studies are needed."

Zamboni was one of the authors of the trial results article which was published in January 2018. The report was very clear that "treating CCSVI" with "venous percutaneous transluminal angioplasty" (PTA) produced no measurable difference for PwMS, i.e. they did not show any improvements in their functioning, and the "treatment" did not reduce the number of new lesions people had in the 12 months after undergoing the "treatment".

From the published report:

"Venous PTA did not increase the proportion of patients with RRMS who improved on the functional composite measure compared with the sham procedure over the 12-month follow-up, nor did it significantly reduce the appearance of new combined brain lesions on MRI at 0 to 12 months. Expanded Disability Status Scale disability measures were stable and similar between the groups at 12 months, matching the composite functional outcome. The annualized relapse rate was also similar between the groups."

You can find the full report on this link:

jamanetwork.com/journals/ja...

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Here is the link to the National MS society of about CCSVI

nationalmssociety.org/Resea...

And of course our site.☺

mymsaa.org/publications/msr...

J🌠

CalfeeChick profile image
CalfeeChickCommunityAmbassador

I thought, "Huh! what do they mean, Should BE?" Thanks for the great post and the link! I especially liked the next article about Stem Cells!

Lynnieheal profile image
Lynnieheal

Now that comments have been made I have now worked out lots more from naysayers . Pleased that have wrote this its woken me up to whos nasty over CCSVI .

Iona60 profile image
Iona60

I was so excited about ccsvi when Dr Zamboni first announced it. I watched and waited and decided that it wasn't for me. I'm now following the stem cell treatments s and hoping they will be a winner.

Did you have the ccsvi procedure? If so, is it still working for you?

Lynnieheal profile image
Lynnieheal

Dr. Ebers has over 35,000 academic citations regarding MS and gives an incredible interview in our documentary Living Proof. He speaks the truth about the corruption in the MS ecosystem and many people don’t want to hear it! What he says affects all of us, not just MS patients!

Living Proof is now available for FREE on Amazon Prime all over the world! amazon.com/gp/video/detail/... MS societys and Barts and London MS researchers in the UK all need to be investigated .

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