Diagnosis by exclusion

[Qt314grl]

How many here ended up with MS diagnosis because nothing else could explain symptoms? Looking for those Particularly with atypical type lesions on brain MRI?

[ssdw1958]

I had Partial blindness in my right eye, was tripping with my right foot and numbness finger tips and numbness on in feet.

[Jesmcd2 CommunityAmbassador]

Qt314grl MS mimics sooooo many different types of things, that yes of course Dr's will try anything 1st I think. No one wants to have a DX of MS.😊

I had gone to a Neuro, who proceeded to tell me that my lesions were all from past migraines. And would I be interested in botox😐😒 The only thing this doc did for me was send me to an arthritis Dr, who sent me the next Mon to the MS clinic!💕 ( we won't talk about the phone call that proceeded after that!😄)

So have patience if you hadn't been dx'ed and if you have?😒 welcome to the roller coaster ride of your life

J 🌠⛄

[CalfeeChick CommunityAmbassador]

I feel I was shuffled around some before I found a really great MS Neuro. At first symptoms of whole right side numbness and tingling, we thought I'd had a stroke. After hours in the ER with no clue, we went to breakfast. During breakfast my whole left side from ribs down went numb. We went to my ortho doc who did many blood tests, x rays, Mri the following day. No DX, but said I needed to perhaps go to teaching University hospital about 50 miles away or go to neuro. I went to the UC Hospital and was turned away because I wasn't an emergency case. Waited 5 weeks for a Neuro appt, he ran a gamet if blood, nerve conduction tests, then finally an MRI. He "called" me, said I have MS. When I became tearful, he actually said,"Don't get upset, you've had long life, and we're gonna start you on Tecfidera." I was 68 at the time and a very active person.. He just wrote me off. We had appt. with him the next week for my blood test result and he said the same thing about not getting upset to my husband. It was all my hubby could do not to deck the guy. He knew that I was JCV positive too. We left with a full copy of all my records, test results, MRI's etc. I called UCSF in San Francisco and got an appt there with one of their docs.. They want to follow me because of my age at diagnosis. They are outstanding! Accommodate me with early appts. so we can avoid morning and afternoon commutes. Treat me with respect and listen to me. I feel very confident with them.

[bavery207]

I was dx by exclusion at age 65 Qt314grl . I was seeing a neuro.for Essential Tremor when the tremor got much worse, so he ordered an MRI to see what might have caused this problem. There were several lesions the neuro. thought might be lymphoma or sarcoidosis among other things. Several tests,three trips to Boston from central Maine to see specialists, and eliminating things one-by-one, I was finally dx with MS.

[ssdw1958 in reply to bavery207]

I’m sorry 😐 that you were diagnosed with this disease I had to diagnose myself with the disease because my doctor didn’t want to listen to me. You are so lucky you have a doctor that cares for you.

This is a good place to find out what’s going on with different people.

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