Hello

[sianr]

Hi there folks I’m knew just diagnosed and head is like an array of arrows in different directions which to be fair ..... no change there 😂😂😂

[ssdw1958]

Can I ask you were you diagnosed with MS if you were I feel your emotions I also have MS and when I found out you don’t know which Way to turn. Can I say one thing don’t go telling everybody you have MS especially Work. The reason being you never know how they are going to take it. I am just saying this because of the way work took this information. But on the other hand you probably will not have any problems. I have one thing to say stay strong 💪 and positive this sight is a good place to listen and also find information.

[SometimesCrazy in reply to ssdw1958]

I'm with ssdw. And don't tell the DMV. If you end up temporarily leaning on a cane or walker you had knee surgery. I don't want you to feel like you are hiding but some people are just ruthless and love drama

[ssdw1958 in reply to SometimesCrazy]

Sometimescrazy

Did you have things happen to you it is truly sad 😞 when people you would have thought would understand and they just don’t. Sorry this sounds so negative but that’s how it goes.

BUT that’s why I like this sight you can say anything and these great people understand. So just remember you can say anything you want and we will understand.

Keep smiling 😊😃

[Iona60]

Welcome sianr . Yes, it is a bit overwhelming to be diagnosed with MS. The good thing is that there are some many treatment options available now. My advice is to find a neurologist that specializes in MS, is understanding and will listen to you.

[Morllyn]

Welcome to the group sianr ! Sorry about the diagnosis though.

[Midgey_Midge06]

Welcome to the club! You will find a ton of support here from everyone. Its a God send really. It has been for me. We warriors gotta stick together

[KDenes]

MS is a difficult beast as it affects so many different things sometimes it's good to laugh at the stupid things that happened that are so frustrating! Good luck on your journey and educate yourself as much as you can.

[jimeka]

sianr hi and welcome. I personally think initially ignorance is bliss. I get to laugh first at the things l am now capable of doing, like forgetting friends names, putting the milk in the cupboard as opposed to the fridge. The list goes on, never mind all the falls because I am too pig headed to use either a stick or a walker. Anyway I laugh first, then research or come on here and ask. Maybe then I will cry, but I have found that no matter what, there is a strength inside each of us that keeps us carrying on. As mentioned already by KDenes dont get stressed, well at least try not to. Blessings Jimeka 🦋 👋 🎄

[erash]

Hi sianr

While we all experience MS differently, we often share many of the same concerns. This is a great place to ask questions and discuss feelings

Look forward to chatting with you

[Jesmcd2 CommunityAmbassador]

Hi sianr sounds about like me!😄 Welcome! Although not a great club to be in. Sry! Just remember this, it's a roller coaster, and sometimes you just have to go with it a day or 2, then ya get back up fighting!💕

We are always here!

Jes 🌠🎄

[sianr]

Thank you all I appreciate all your advice, I am a very private person and don’t tend to tell people about my health.

It’s been a rollercoaster and a half and it just doesn’t end. Became scunnered with my body then I realise its important to listen to it which to be fair I have been playing the ignorance is bliss game and sat on all my symptoms for a long time before feeling beat down enough to get some advice and eventually the day you sit with a neurologist who is very passive in their explanations or should I say lack of it!!!

Theres an era of comfort when reading others posts , I’m not on my own.

I have crutches which I tend not to use, how many times I’ve nearly landed on my face , I’m great at plausible excuses, we have to I think to get by.

The biggest obstacle is trying to explain to my kids , oldest is great, I don’t want them growing up with memories of mum can’t do x y and z . Which is prob why I push myself constantly.

Thank you all for just being there.

SA

[ssdw1958 in reply to sianr]

Kids are unbelievable they seem to know what to say am 9 times out of 10 they get it before the adults do my youngest son was in the first grade when I was diagnosed I was Trying to explain to him what MS was and how I did it was I said to him you know how the lamp in the living room doesn’t stay plugged in all the time well that’s kind a like mom is legs there or a trying to explain to him what MS was and how I did it was I said to him you know how the lamp in the living room doesn’t stay plugged in all the time well that’s kind a like mommy‘s legs there like wires that don’t have a good connection and so that’s why legs don’t work well he said to me why can’t the doctors connect the wires. Good question but I didn’t have an answer for that one The boy who is 20 years old seams to know what is going on with me. Good luck to you just take one day at a time.

[sianr in reply to ssdw1958]

Auh ssdw you brought a tear to my eye, your so right and it’s a great explanation to use , if you don’t mind I will use this, it’s a great analogy. Your all so kind, life can be difficult and I’ve always said to my kids you make your life it can be as hard or as easy as you make it ..... time to take my own advice. Switch my senses on, listen to myself more often, we don’t often do that, that makes life easier all round. Sometimes I forget its not just me that’s going through this but my family also, it’s hard when your 12 yr old grabs you while out shopping to stop me falling over or she says mum you can hold on to me I’ll help you, take my arm. I’m supposed to hold her up not the other way around. God I’m having an emotional day!!! Pragmatic processing of my emotions is avoided today. Thank you time to be positive, off to do something that makes me smile. Be a mum 🤪

[ssdw1958 in reply to sianr]

Hi sianj I really need to reread before I hit send I reread what I sent to you not very well done. I just want to say to you, you have a great 12-year-old it is amazing how fast they catch on how you are feeling. My son it was amazing as he was getting taller I would hold on to his shoulder than he actually was holding me up and one time when it was extremely hot I couldn’t walk so he picked me up and got me into the house. Your family is your big support Phycaly and mentally. Becareful in your walking have a safe holiday season.

[Doubled51]

Welcome to our family sainr. You came to a great place to learn how to deal with this monster called MS. We all have MS so we all have something in common. Just take it a little at a time. I was diagnosed in April of this year and was devastated but now I’ve found that i can make it day by day. Lean on us and ask anything you need cause chances are someone has gone thru whatever is going on. Any symptoms you want to ask about this is the place. We have some very knowledgeable people here so feel free to jump right in.

God bless and welcome

[melack01]

Welcome. Some of us are newly diagnosed (me since May) and others have been dealing with it a long time. We have answers, advice, and questions.....mostly questions. This is a great place to touch base when you need a question answered, want to vent, or just need the company of somebody who understands.

[johnMSAA Partner in reply to melack01]

Well said, melack01 !

- John, MSAA

[Jesmcd2 CommunityAmbassador in reply to melack01]

Agreed melack01 ! You doing ok? You have been quite.💕

J 🌠🎄

[melack01 in reply to Jesmcd2]

I have been ok Jesmcd2 . My MRI last month was just "minimally worse." I've been trying to find the right anti depressant. So far, Wellbutrin doesn't seem to be the one, and the Prozac is kicking my butt....I'm tired all the time. Switched it to night time and am hoping I will sleep through most of it. Worked yesterday but not today so far. Feel like being on nothing and just dealing with the depression.

[Jesmcd2 CommunityAmbassador in reply to melack01]

I'm sorry melack01 I do understand the feeling of being to get the meds right.😕 It takes time, unfortunately. As from my understanding it takes about 2 wks for them to fully kick in.😊 So be patient and TALK to your doc if they arnt working!

And Mel, we are still here also😉

J 🌠🎄

[sianr]

Thank you all I really do feel supported already x

[cljones]

@sianr so glad you joined our group. I wish it was for different reason but you will find this a very supportive group.

[Raingrrl]

Welcome sianr ! This is a great group. People with all lengths of history and experiences with M.S. participate here.

[Kenu]

Welcome to our group of MS’rs. I was diagnosed 22 years ago and my boy was 3. It was hard, but we both adapted well. Just be honest and let them know what’s going on and with Tyler he just started helping with out asking. That was nice as until his teens I don’t think he really understood MS. He is almost 25 now and will go to sporting events and always helps me with stairs, refreshments, etc. It is what it is and we are always looking at ways to deal with it 🤷🏼‍♂️ This is a great place to find out 😉👍🙏❤️Ken