New scary symptom.

[Stepinup]

Last night I experienced my fisrt brain seizure? I put a question mark because I have never had one in my life before. It was scary and I couldn't see out of my right eye. I only saw white star bursts and my brain hurt really bad afterwards. I really don't know what is happening with me However I'm glad it is now on video and my EEG!

It felt like someone electrified my upper right frontal lobe. I didnt shake but my eye was twitching.

Anyone else have seizure type symptoms? Please chime in!!

Stephanie

[Royjr]

Hello Stepinup I personally haven't experience what you did but I hope you feel better

[dmaskal1]

Stepinup , I've had a grand mal siezure a couple times. I didn't know I was having a seizure but my wife sure did. She called an ambulance which took me to the hospital. My neurologist prescribed medication at a dose that has prevented them from attacking me again. I hope yours can help you too.

[Daring_Greatly]

Hi Steph,

I am newly diagnosed and have not had a seizure but I do experience twitching under my left eye on a regular basis. This is a new symptom for me. Have you experienced the twitching and sore "brain" prior to this orcas it the first time during this incident? Hope you're feeling better, Carrie.

PS ... did you seek medical attention?

[Amore55 in reply to Daring_Greatly]

Steph, I have had that happen twice. The first time my husband was out of town so I was all alone. It was terrifying. My arms and legs flailed for about 7-10 minutes, i couldn't see, I felt like I was going into shock because it went on so long. Afterwards I wanted to call 911, but couldn't handle my phone or see. So I just laid perfectly still. I went to the neuro the next day and of course they did an MRI. It was so scary. The next my hubby was home and took me straight to th ER. I hope you don't have anymore, like I said I was so frightened and felt so out of control. Let me know how you do, okay? I will be praying for you. 😊 With love, Kelly xx

[Fancy1959 in reply to Amore55]

oh Amore55, it's Fancy1959. I wish I could have been there for you. That must have been absolutely terrifying. You're in my thoughts and I hope it never happens to you again. I hope your neurologist has you on a therapy to prevent the attacks from hitting you in the future. Again I wish I were closer. We need a support network we can count on and sometimes our husbands just have to get on with their careers and work and can't always be there for us. Thinking about you. Fancy

[erash]

Stepinup that sounds like a migraine or an optic migraine? I guess since u r having the eeg, they'll b able to differentiate...I bet it is scary!

Hope all goes well

[jennie62 in reply to erash]

Sounds just like the first migraine I had erash.

Make sure you have all the tests done (making sure you have copies of the results too) and the people at the ER listen to you!

My first migraine woke me because it felt like an ice pick had been jabbed into my head and I couldn't see because of the auras or move all day because I was too dizzy. My former boss (a former RN nurse) made sure I called an ambulance (or she did, don't remember) and went to the ER. Had my first MRI and spinal tap that day. (10-15 years ago) The only good thing that came of that ER visit was linking up with a doctor who could help me with the pain, auras and dizziness. Went to the wrong neuro at first, but now I have a neuro that knows exactly what to do and how to treat MS, chronic migraines and my funny walking.

I sure hope you're doing better Stephanie!

Jennie

[Jesmcd2 CommunityAmbassador]

~hugs~ Stepinup hope your feeling better today. When this happened did you still have the eeg on? 🌠

[Stepinup in reply to Jesmcd2]

Yes, it was a 3 day study.

[Eleyne92]

Stepinup , oh my! That's scary. I've never experienced anything like that. Did you go to the ER?

I hope you're feeling better.

[Stepinup in reply to Eleyne92]

My memory is very off today and my balance is way off. Two days after episode and I feel okay but troubled by memory farts....lol.

[dmaskal1]

Stepinup , I've had two grand mal siezures in the middle of the night which awoke my wife who called an ambulance to get me to the hospital. I kept calling her name though she was right there all the time. When they were trying to get me out of ben and strap me to the back board to take me out of our house and into the ambulance I strongly kicked one of the people doing it who said it happens all the time as my wife apologized for my resistance and kicking them. I didn't remember a thing except waking up in the hospital wandering how and why I was there. My neurologist prescribed some medicine to stop any more seizures, increased the does after the second one, and I've been seizure free ever since. Dave

[Stepinup in reply to dmaskal1]

Hi Dave,

The brain is amazing!

I talked with the tech at Neuro office today and they recommend walking with a cane because of my balance and head wobbles. I also mentioned my small seizure and if it was a seizure they are going to call me asap.

I'm glad you chimed in Dave. It helped me relax knowing that others have had types of seizures with MS.

Good day to you😃

Stephanie

[dmaskal1]

Stephanie, You're welcome.

[Raingrrl]

Hi Stepinup ! I hope you are feeling better. I've never experienced anything like you are describing, knock on wood, but that's what makes MS such an unpredictable disease. No two people seem to experience it exactly the same.

[Fancy1959]

Stepinup, it's Fancy1959. No I can honestly say I have never had anything remotely similar to that thankfully. I hope you got to the ER immediately to have a brain scan or MRI done. That is nothing to take lightly or to mess around with. I hope that you are feeling much better. Please keep us informed about what is going on. By simply posting to us you will be teaching us about what is happening to you. Information is always good. Hopefully someone can share some information back with you. I am thinking about you and hoping that this never happens to you again. Hopefully your neurologist can teach you on a therapy that will prevent anything remotely close to this from attacking you in the future. Fancy